Cystic Fibrosis Forum (EXP)

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  1. V

    Please help!

    Eli, I know exactly how you feel with the tantrums and everything, Garran was making himself throw up so he wouldnt have to eat. Tomorrow we have an upper GI scheduled to see if there isnt something medical that is causing him to not want to eat. Then we will look at psychological. It has...
  2. V

    Please help!

    Eli, I know exactly how you feel with the tantrums and everything, Garran was making himself throw up so he wouldnt have to eat. Tomorrow we have an upper GI scheduled to see if there isnt something medical that is causing him to not want to eat. Then we will look at psychological. It has...
  3. V

    Please help!

    Eli, I know exactly how you feel with the tantrums and everything, Garran was making himself throw up so he wouldnt have to eat. Tomorrow we have an upper GI scheduled to see if there isnt something medical that is causing him to not want to eat. Then we will look at psychological. It has...
  4. V

    Please help!

    I dont know what to say about the new med, because garran is not on that. But in regards to the eating issue, It has been about a year now where Garran just wont eat. He will nibble now and then but nothing substantial. He used to eat constantly but out of the blue he just stopped. He stared...
  5. V

    Please help!

    I dont know what to say about the new med, because garran is not on that. But in regards to the eating issue, It has been about a year now where Garran just wont eat. He will nibble now and then but nothing substantial. He used to eat constantly but out of the blue he just stopped. He stared...
  6. V

    Please help!

    I dont know what to say about the new med, because garran is not on that. But in regards to the eating issue, It has been about a year now where Garran just wont eat. He will nibble now and then but nothing substantial. He used to eat constantly but out of the blue he just stopped. He stared...
  7. V

    Pictures of Yourself!

    <img src="http://shutter03.pictures.aol.com/data/pictures/07/007/1F/77/07/B1/AJMf1scqO14U8Q9gdAExEdmoWi5E+4bW0060.jpg"> Heres a pic of me and my baby!
  8. V

    Standing water and Mold

    Julie, Do any of the Landlord Laws apply to Military Housing? Because we live on post. The housing is now privately managed but we still live on the installation. Just curious. we live in Fort Eustis, Virginia by the way.
  9. V

    Standing water and Mold

    Ok it has been about a year now that we have had this leak in my sons bedroom ceiling and in the window sill. so much so that the ceiling is bumpy with water damage and the drywall all around the window is all breaking apart and moldy underneith. It smells in there so bad that I have to keep a...
  10. V

    REST IN PEACE LYNLEE

    you and her family are in our thoughts and prayers.
  11. V

    CF Recipes

    Thats an awesome recipe I will try it tomorrow for dinner! thanks
  12. V

    FOR VMHOWARD

    Awesome! Thank you so much! I really am very excited! Maybe more than the kids!...lol...I imagine we will be very tired, but it will be so worth it! The kids go to school three days after we get back, and Garran starts Kindergarten, tell me they wont have something to write about "what I...
  13. V

    FOR VMHOWARD

    Oh thank you Seana! That is so wonderful! I just about cried again. I cry everytime the Make a Wish people call. I just cant believe that they are doing this for Garran. It really means to world to him! I showed him the montage. He wanted to watch it over and over again! Thank you Thank...
  14. V

    CF Recipes

    I am sure there are alot of topics on here with various recipes. But I thought it would be neat to get them all in one spot. Everyone has different ways of helping to maintain or gain weight. We have come up with a few high calorie recipes that really did wonders for Garran and they tasted...
  15. V

    Feeding Tube

    Oh and so far Garran has gained over 10 pounds since February! And his Sats are up to 97-98%. Much better Lung Function with the Increased nutrition!
  16. V

    Feeding Tube

    Karon, At first after the surgery it was very difficult to use the vest and we used the old fashioned method of CPT. But after a few weeks I was able to adjust his old vest that had only one side that inflated and the side that didnt I sewed an arch into so it didnt hit his button. after...
  17. V

    Feeding Tube

    My son received his G-tube in the end of February. When he was still 4. He is 5 now. It took about 4 weeks to heal completely and then they were able to replace the long temporary tube with the MICKEY button. after that it was still about 2 more weeks before he was ok to do everything with...
  18. V

    the 31st is today!

    Happy Birthday!!!!! Hope you have a terrific day!
  19. V

    CF forum awards!

    OK I dont know too many people on here yet, but here goes: 1. person you feel like you are most like: Leah 2. person to first respond to posts: Melissa 3. person who feels your pain: Leah, Jane 4. person who posts most on your blog: Melissa, Terry, Leah 5. person who PMs you the most...
  20. V

    where are you from?

    Born in Syracuse NY, Lived there for 19 years then moved to Cameron NC then from there we lived: Louisville KY Mount Washington KY Lawrenceburg KY Mallory NY Fulton NY Liverpool NY Solvay NY Palermo NY back to Louisville KY Columbia SC Fort Eustis VA where we live for now
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