Cystic Fibrosis Forum (EXP)

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  1. M

    Clinic visit yesterday

    Emma's visit went well yesterday! It has been 2 months since they saw her. In that time, she gained 3 pounds 1 ounce and grew 1 inch! She is in the 55 percentile for weight and 25 percentile for height. They took a culture and we will find out her results next week.
  2. M

    Clinic visit yesterday

    Emma's visit went well yesterday! It has been 2 months since they saw her. In that time, she gained 3 pounds 1 ounce and grew 1 inch! She is in the 55 percentile for weight and 25 percentile for height. They took a culture and we will find out her results next week.
  3. M

    Clinic visit yesterday

    Emma's visit went well yesterday! It has been 2 months since they saw her. In that time, she gained 3 pounds 1 ounce and grew 1 inch! She is in the 55 percentile for weight and 25 percentile for height. They took a culture and we will find out her results next week.
  4. M

    Clinic visit yesterday

    Emma's visit went well yesterday! It has been 2 months since they saw her. In that time, she gained 3 pounds 1 ounce and grew 1 inch! She is in the 55 percentile for weight and 25 percentile for height. They took a culture and we will find out her results next week.
  5. M

    Clinic visit yesterday

    Emma's visit went well yesterday! <br /> <br />It has been 2 months since they saw her. In that time, she gained 3 pounds 1 ounce and grew 1 inch! <br /> <br />She is in the 55 percentile for weight and 25 percentile for height. <br /> <br />They took a culture and we will find out her results...
  6. M

    BCBS of MN and Fairview

    They reached a new contract! The U 0f M clinic will continue to be covered! <img src="i/expressions/face-icon-small-happy.gif" border="0">
  7. M

    BCBS of MN and Fairview

    They reached a new contract! The U 0f M clinic will continue to be covered! <img src="i/expressions/face-icon-small-happy.gif" border="0">
  8. M

    BCBS of MN and Fairview

    They reached a new contract! The U 0f M clinic will continue to be covered! <img src="i/expressions/face-icon-small-happy.gif" border="0">
  9. M

    BCBS of MN and Fairview

    They reached a new contract! The U 0f M clinic will continue to be covered! <img src="i/expressions/face-icon-small-happy.gif" border="0">
  10. M

    BCBS of MN and Fairview

    They reached a new contract! The U 0f M clinic will continue to be covered! <br /> <br /><img src="i/expressions/face-icon-small-happy.gif" border="0">
  11. M

    PTC124 for Nonsense Mutations

    <b>Orphan drug Status:</b> In the U.S, an orphan drug is any drug developed under the Orphan Drug Act of January 1983 ("ODA"), a federal law concerning rare diseases ("orphan diseases"), defined as diseases affecting fewer than 200,000 people in the United States or low prevalence is taken as...
  12. M

    PTC124 for Nonsense Mutations

    <b>Orphan drug Status:</b> In the U.S, an orphan drug is any drug developed under the Orphan Drug Act of January 1983 ("ODA"), a federal law concerning rare diseases ("orphan diseases"), defined as diseases affecting fewer than 200,000 people in the United States or low prevalence is taken as...
  13. M

    PTC124 for Nonsense Mutations

    <b>Orphan drug Status:</b> In the U.S, an orphan drug is any drug developed under the Orphan Drug Act of January 1983 ("ODA"), a federal law concerning rare diseases ("orphan diseases"), defined as diseases affecting fewer than 200,000 people in the United States or low prevalence is taken as...
  14. M

    PTC124 for Nonsense Mutations

    <b>Orphan drug Status:</b> In the U.S, an orphan drug is any drug developed under the Orphan Drug Act of January 1983 ("ODA"), a federal law concerning rare diseases ("orphan diseases"), defined as diseases affecting fewer than 200,000 people in the United States or low prevalence is taken as...
  15. M

    PTC124 for Nonsense Mutations

    <b>Orphan drug Status:</b> <br />In the U.S, an orphan drug is any drug developed under the Orphan Drug Act of January 1983 ("ODA"), a federal law concerning rare diseases ("orphan diseases"), defined as diseases affecting fewer than 200,000 people in the United States or low prevalence is taken...
  16. M

    PTC124 for Nonsense Mutations

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> PTC124 has been granted orphan drug status by the FDA and the European Commission for the treatment of CF and DMD due to nonsense mutations. The FDA has also granted PTC124 Subpart E designation for expedited...
  17. M

    PTC124 for Nonsense Mutations

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> PTC124 has been granted orphan drug status by the FDA and the European Commission for the treatment of CF and DMD due to nonsense mutations. The FDA has also granted PTC124 Subpart E designation for expedited...
  18. M

    PTC124 for Nonsense Mutations

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> PTC124 has been granted orphan drug status by the FDA and the European Commission for the treatment of CF and DMD due to nonsense mutations. The FDA has also granted PTC124 Subpart E designation for expedited...
  19. M

    PTC124 for Nonsense Mutations

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> PTC124 has been granted orphan drug status by the FDA and the European Commission for the treatment of CF and DMD due to nonsense mutations. The FDA has also granted PTC124 Subpart E designation for expedited...
  20. M

    PTC124 for Nonsense Mutations

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> <br /> <br />PTC124 has been granted orphan drug status by the FDA and the European Commission for the treatment of CF and DMD due to nonsense mutations. The FDA has also granted PTC124 Subpart E designation for...
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