Cystic Fibrosis Forum (EXP)

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  1. V

    Any Suggestions?

    Okay...where to begin, my daughter 19 years old w/cf is doing very well. PFTs are awesome, which we are so grateful since she doesn't do her treatments real well, mainly because the doctors that she have gone to make her feel silly for doing them, i.e., "with the numbers you have and with your...
  2. V

    Upcoming surgery

    Hello! My 18 year old daughter w/cf is scheduled for gallbladder removal and a colectomy for the end of this month. She will be going in a week earlier for a tune up so hopefully this will put her lungs in the best shape before surgery. I am sooooo nervous. She has had minor surgeries in the...
  3. V

    Need to worry?

    My daughter, w/cf 18 years old, recently changed doctors who pretty much has told her that she is very healthy CFer and can't for the life of him understand why she was ever in the hospital when she was younger based on her weight and pfts, so this little girl of mine has decided to completely...
  4. V

    Colectomy

    Hello! New to this so apologize upfront if I don't do this correctly. My daughter how is 18 w/cf has had some problems with her colon not functioning at all. She currently has a cecestomy (tube in the lower area of her belly) to help things; however, it keeps getting infected, so the GI...
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