Cystic Fibrosis Forum (EXP)

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  1. P

    TOBI and sore throat

    I know colistan made me short of breath so hopefully youll have better luck with it, I read that others get along just fine with colistan.
  2. P

    TOBI and sore throat

    I know colistan made me short of breath so hopefully youll have better luck with it, I read that others get along just fine with colistan.
  3. P

    TOBI and sore throat

    I know colistan made me short of breath so hopefully youll have better luck with it, I read that others get along just fine with colistan.
  4. P

    Experimental Hadassah-inspired pill is 'promising' in repairing cystic fibrosis gene

    Well Ive read about the PTC124 trial and that its for the non-sense mutations with an X at the end, but I have never heard of PTC299, sounds like that one is for the STOP mutiations. So glad that they are getting somewhere with this. I cant wait for PTC124 to be released to the public, cause i...
  5. P

    Experimental Hadassah-inspired pill is 'promising' in repairing cystic fibrosis gene

    Well Ive read about the PTC124 trial and that its for the non-sense mutations with an X at the end, but I have never heard of PTC299, sounds like that one is for the STOP mutiations. So glad that they are getting somewhere with this. I cant wait for PTC124 to be released to the public, cause i...
  6. P

    Experimental Hadassah-inspired pill is 'promising' in repairing cystic fibrosis gene

    Well Ive read about the PTC124 trial and that its for the non-sense mutations with an X at the end, but I have never heard of PTC299, sounds like that one is for the STOP mutiations. So glad that they are getting somewhere with this. I cant wait for PTC124 to be released to the public, cause i...
  7. P

    Germ Gaurdian!

    It does look like a good product and something that wouldnt take very much time to clean nebs. Looks like you throw them in the sanitizer and turn it on. I may have to look into buying it.
  8. P

    Germ Gaurdian!

    It does look like a good product and something that wouldnt take very much time to clean nebs. Looks like you throw them in the sanitizer and turn it on. I may have to look into buying it.
  9. P

    Germ Gaurdian!

    It does look like a good product and something that wouldnt take very much time to clean nebs. Looks like you throw them in the sanitizer and turn it on. I may have to look into buying it.
  10. P

    Looking For CF Pt. Please help

    Do you think you might be able to contact his mother, only if she is still living in the same area of course.
  11. P

    Looking For CF Pt. Please help

    Do you think you might be able to contact his mother, only if she is still living in the same area of course.
  12. P

    Looking For CF Pt. Please help

    Do you think you might be able to contact his mother, only if she is still living in the same area of course.
  13. P

    Did you guys notice?

    Wow I wished I had been on to see this, cause I always see 15-20 people on here at one time. Maybe Ill catch it next time.
  14. P

    Did you guys notice?

    Wow I wished I had been on to see this, cause I always see 15-20 people on here at one time. Maybe Ill catch it next time.
  15. P

    Did you guys notice?

    Wow I wished I had been on to see this, cause I always see 15-20 people on here at one time. Maybe Ill catch it next time.
  16. P

    Looking For CF Pt. Please help

    Sorry I cant help you but I do hope that you find your friend. Good Luck!!
  17. P

    Looking For CF Pt. Please help

    Sorry I cant help you but I do hope that you find your friend. Good Luck!!
  18. P

    Looking For CF Pt. Please help

    Sorry I cant help you but I do hope that you find your friend. Good Luck!!
  19. P

    TOBI and sore throat

    Ive noticed that after taking tobi after a week then my throat will get hoarse, right now, its getting a little bit better, but screaming and having fun Sunday didnt help either, coughing trying to move stuff around just makes my throat worse. Now my throat doesnt hurt I just have a hoarse...
  20. P

    TOBI and sore throat

    Ive noticed that after taking tobi after a week then my throat will get hoarse, right now, its getting a little bit better, but screaming and having fun Sunday didnt help either, coughing trying to move stuff around just makes my throat worse. Now my throat doesnt hurt I just have a hoarse...
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