Cystic Fibrosis Forum (EXP)

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  1. M

    Daughter is just starting Pulmozyme

    I have the same comment dont do pulmozyme at night because then by time it reaches peak effectiveness you will be asleep. I do zopenex with my vest and I also do pulmozyme with vest with workout afterward but I am not as concerned since I take 2 vials a day and it is a risk I am willing to...
  2. M

    Daughter is just starting Pulmozyme

    I have the same comment dont do pulmozyme at night because then by time it reaches peak effectiveness you will be asleep. I do zopenex with my vest and I also do pulmozyme with vest with workout afterward but I am not as concerned since I take 2 vials a day and it is a risk I am willing to...
  3. M

    Daughter is just starting Pulmozyme

    I have the same comment dont do pulmozyme at night because then by time it reaches peak effectiveness you will be asleep. I do zopenex with my vest and I also do pulmozyme with vest with workout afterward but I am not as concerned since I take 2 vials a day and it is a risk I am willing to...
  4. M

    How long?

    I agree it varies tremendously even though mutatins classes arent the end all be alls some hope for I went 21 years iwth no treatments I knwo I am a rarity but it just shows there are extremes as others do everythign right and never make it that old. It also depends alot IMO on nutritional...
  5. M

    How long?

    I agree it varies tremendously even though mutatins classes arent the end all be alls some hope for I went 21 years iwth no treatments I knwo I am a rarity but it just shows there are extremes as others do everythign right and never make it that old. It also depends alot IMO on nutritional...
  6. M

    How long?

    I agree it varies tremendously even though mutatins classes arent the end all be alls some hope for I went 21 years iwth no treatments I knwo I am a rarity but it just shows there are extremes as others do everythign right and never make it that old. It also depends alot IMO on nutritional...
  7. M

    General Debate

    well I havent read the posts yet but having experienced infertility I was wondering A-why it seems some of the women and men I know with it are the most stable etc individuals just waiting for a child and B-why the ones I know that are the most fertile are in less than the perfect spot to be...
  8. M

    General Debate

    well I havent read the posts yet but having experienced infertility I was wondering A-why it seems some of the women and men I know with it are the most stable etc individuals just waiting for a child and B-why the ones I know that are the most fertile are in less than the perfect spot to be...
  9. M

    General Debate

    well I havent read the posts yet but having experienced infertility I was wondering A-why it seems some of the women and men I know with it are the most stable etc individuals just waiting for a child and B-why the ones I know that are the most fertile are in less than the perfect spot to be...
  10. M

    Help me am i making the right decision?

    Vampy-I want to give you advice on one thing you mentioned. You said that your son comes first and you and your treatments 2nd. As a new mom myself I must tell you that we haev to reconsider this. Putting ourselves 2nd, or more commonly last is something many many mothers in this country do and...
  11. M

    Help me am i making the right decision?

    Vampy-I want to give you advice on one thing you mentioned. You said that your son comes first and you and your treatments 2nd. As a new mom myself I must tell you that we haev to reconsider this. Putting ourselves 2nd, or more commonly last is something many many mothers in this country do and...
  12. M

    Help me am i making the right decision?

    Vampy-I want to give you advice on one thing you mentioned. You said that your son comes first and you and your treatments 2nd. As a new mom myself I must tell you that we haev to reconsider this. Putting ourselves 2nd, or more commonly last is something many many mothers in this country do and...
  13. M

    Help me am i making the right decision?

    you are only two months pp so your body can really really play tricks on you at this point. I truly truly hope that is the case and if it is NOT the case I HIGHLY urge you to move in with your mom as you have a long road ahead and having pregnancies close together like this greatly increases...
  14. M

    Help me am i making the right decision?

    you are only two months pp so your body can really really play tricks on you at this point. I truly truly hope that is the case and if it is NOT the case I HIGHLY urge you to move in with your mom as you have a long road ahead and having pregnancies close together like this greatly increases...
  15. M

    Help me am i making the right decision?

    you are only two months pp so your body can really really play tricks on you at this point. I truly truly hope that is the case and if it is NOT the case I HIGHLY urge you to move in with your mom as you have a long road ahead and having pregnancies close together like this greatly increases...
  16. M

    Help me am i making the right decision?

    wow Debbie-thanks for the note. It is nice that you not only considered the other side of the coin but were willing to admit that you did and that it might be valid! thanks! Vampy-what are you thinking?
  17. M

    Help me am i making the right decision?

    wow Debbie-thanks for the note. It is nice that you not only considered the other side of the coin but were willing to admit that you did and that it might be valid! thanks! Vampy-what are you thinking?
  18. M

    Help me am i making the right decision?

    wow Debbie-thanks for the note. It is nice that you not only considered the other side of the coin but were willing to admit that you did and that it might be valid! thanks! Vampy-what are you thinking?
  19. M

    Vitamin c regulates cftr???

    No, salicylic acid is not vitamin C, it is aspirin. Aspirin has also been noted to reduce inflamation many times over but it can have side effects such as increased bleeding which can be a problem in CF. i tried it for a while but had issues with it and I have problems with hemoptysis so it...
  20. M

    Vitamin c regulates cftr???

    No, salicylic acid is not vitamin C, it is aspirin. Aspirin has also been noted to reduce inflamation many times over but it can have side effects such as increased bleeding which can be a problem in CF. i tried it for a while but had issues with it and I have problems with hemoptysis so it...
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