Cystic Fibrosis Forum (EXP)

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  1. M

    help with getting started

    Hi everyone, I'm a freshman in college this year and pretty much haven't done any sports since last spring. My PFT's have dramatically decreased to 45% FEV1 and I feel like I will never be able to get my old lung capacity back but I want to give working out a chance to see if i can recover at...
  2. M

    this winter season is terrible!

    I'm living in NJ and the winter season here is terrible! Anyone else constantly feeling bad? I just got off iv's about 2 weeks ago and I already feel like another harsh cold is coming on. I'm doing everything to stay healthy but it seems like this weather has really set me back. I'm considering...
  3. M

    keeping up with treatments

    Hey guys i was just wondering how consistent everyone is on doing there treatments. i know for me doing a full 28 days of tobi morning and night is almost impossible, theres simply night enough time in a day to sit home and do it. Its also really hard for me to remember all my pills (vitamins...
  4. M

    megace or marinol

    hey everyone, the doctor at my last visit suggested that i think about taking megace for appetite stimulation but he also said something about it being a female hormone and said could have some bad side affects on males (im 18 and at my heaviest i was only 120 lbs). so my question is is their...
  5. M

    18 y/o w/ possible depression - need suggestions

    Hi everyone, im a 18 y/o male and just got the news that i have to start 2-3 week iv meds. For my past few doctors visits iv been losing lung function and weight and everyone keeps telling me "well just do more treatments and try to eat more" but i feel like theres an underlying issue that im...
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