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Any suggestions on how to get an accurate Fecal Elastase from an 8 month old? Also, is it okay for her to be on Lansoprazole(Prevacid), Baclofen & Amox-Clav? I forgot to ask & the girls were not very helpful at our local Labcorp. Thanks in advance

Today we found out our daughter does not have Cystic Fibrosis. Grateful and relieved about the results, we still stand in limbo land. She has several unresolved health issues and has pneumonia for what is the 6th time since her birth (she's only 8 months). Our next step with our sweet girl is...

We sent off my daughters CF Amplified test the last week of November. I called Ambry this morning to double check and see if her lab work had already been processed. They said that they faxed the Pediatricians office December 27. Well, we haven't gotten a phone call from the office yet...should...

We have begun to tell relatives to please be respectful of our daughter and her susceptibility to germs. We have asked that people be open & honest with us about being sick or telling us if their children are sick. My husbands family does not seem to understand the importance of this. It seems...

I called John's Hopkins 2 months ago to schedule an appointment for our daughter. I received a letter in the mail this past Saturday stating they had to cancel that appointment and reschedule it for two weeks later. I know it's only two weeks, but we have been anticipating this appointment for...

We just got home from a two day hospital stay with our daughter. Monday, was like any other day. I hooked Vivien up to her feeding pump and about 45ml into her feeding she began to strain as if trying to go to the bathroom. I looked down and her g-tube was full of what appeared to be yellow...

Does anyone know anything about the drug Baclofen. My daughter was put on it after the GI specialists endoscopy procedure revealed that she had continued reflux after her Nissen & g-tube placement. What I have read about it, I don't like in the least... Is this a common drug used for severe...

It was recommended that I re-post in the adult section. So here goes. My daughter (who has not specifically been diagnosed with CF) had a Bronchoscopy that revealed she had these bacterias Moraxella Catarrhalis & Haemophilus Species I'm not sure what kind of bacteria this is & was wondering...

My daughter (who has not specifically been diagnosed with CF) had a Bronchoscopy that revealed she had these bacterias Moraxella Catarrhalis & Haemophilus Species I'm not sure what kind of bacteria this is & was wondering if anyone may know & may have experienced these bacterias with their...

I know I post often about questions relating to cf, but after seeing two different GI specialists this week & showing them pictures of Vivi's BMs, they would not commit to saying either way, if they looked normal or not. They just shrugged & said they looked "normal & yet, not normal." However...

My daughter met with her pediatrician today & we discussed all of her current issues (pneumonitis & mucusy stools), I again asked about the possibility of a CF diagnosis. He told me that CF patients don't normally "thrive" like Vivien is doing now (her initial diagnosis was "failure to thrive,"...

I am new to this CF forum, so I hope I am doing this right. I will begin by stating my Vivien has not been diagnosed as of yet with anything other than "failure to thrive, laryngomalacia & GERD." However, I would like to give you all a brief history and ask your thoughts, seeing as you all know...