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I have always loved food,I love to cook it,to smell it and to eat and enjoy its many flavours and textures.When im healthy I eat as any regular person altho I dont gain the weight they do but I maintain a healthy weight that my doctors are happy with.My issue is when I get sick I lose the want...

There are many aspects of taking care of yourself when you have CF,doing treatments,eating right,taking pills and excercising are all important for us to maintain good health.For myself,my worst area is excercise, sometimes I just cant bring myself to get out and go for a walk or jog. Luckily...

So im being admitted into hospital tommorow,while talking to my CF nurse about options she mentioned I could get a Picc line and go home or I can stay in hospital, its my choice.I have always stayed in the hospital until I was off IV meds, ive never taken it home with me,I worry that if im at...

Well im being admitted in the hospital for a few weeks and im beginning the packing routine,but it seems year after year I always forget to pack a brush even tho I tell myself the year before I wont forget it again! So I was wondering is there something you seem to frequently forget when your...

Today my lungs have just been experiencing a dull constant pain everytime I breathe,any ideas on what I should take to relieve it? Advil maybe? thankyou <img src="i/expressions/face-icon-small-smile.gif" border="0">

Now I know this may be an odd topic,but I got to thinking about dreams, mostly about my own. After some thought I realised in my dreams I never have CF in them, I dont cough,I dont have trouble breathing and I can run for miles and keep up with everyone. But I am confused,since all ive ever...

So Ive been out one week and had my first appointment today, when I was admitted I was at 40%, when I was discharged I was 36%, today I was 33% so things arent looking so good, I gotta wear oxygen full time and eat lots since ive lost 2 pounds this week as well v.v They are trying an inhalent...

Usually my pft are about 50%, but when I declined to 44% then 40% they thought it was time I was admitted.I was in for 2 weeks but recovery seemed slow, I just wanted to get home and back to life where I thought I would recover faster after a 2 week tune-up. Before I was discharged I did a PFT...

The other night I was laying in bed wondering what happens to your old lungs when you get new ones, do they incinerate them or use them for research or something, do you have the option of keeping them (inno that sounds creepy but there a part of me and was jw) Thankyou for your replies <img...

So im sure weve all seen the Mucinex commercial on tv, the little green mucus ppl are living in yur lungs, you take this amazing pill and bam you cough them out easy as pie. Now this got me wondering, could this drug help with my mucus? does anyone know if it works?what are your experiences with...

My name is Melissa and as you can all guess I have have CF,when I was a teen I wasnt affected so much by this desease but as I got older ive began to decline.As a kid and into my teen years I worked,and moved out by the time I was 17, I homeschooled myself and graduated high school and worked in...