Cystic Fibrosis Forum (EXP)

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  1. G

    What should I do?

    My DD has cultured pseudomonas and the doctor had called in Tobi to the pharmacy.  Since this her first time doing it they want to have her do her first treatment in their office.  The RT said she would have to call me back and let me know when she could get us in.  She said they are really busy...
  2. G

    Stomach pains

    My son has had moderate to severe stomach pains for the last 6 days. I am new to all of this since they were diagnosed less than 2 months ago. He has never had this problem before. He started Creon enzymes about a month ago. I thought maybe they were making him constipated but that is not the...
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