Search results

Hey all, I'm moving to Southern Oregon from Southern Arizona in a few weeks for a new job(!!!), specifically the Medford/Ashland area. But I have 1 little issue: the CF clinic is in Portland, and good 5 hour drive. I've been very fortunate that I have a clinic in my hometown, and the thought of...

I thought we needed a single place were we could post reviews/thoughts on any laxatives, stool softeners and etc that people have used. As we all know, this can be a big (and potentially) dangerous aspect of CF care and it's good to have options. I know many on this forum have had...

I had my first Endo appointment a few days ago. I scheduled it way back in March after my GTT 2 hr sugars came back in the 160s which is abnormal. However, my A1C was 5.4% (I know about the "inaccuracy" of this for CFers). I also have NO symptoms of diabetes whatsoever. Anyways, the Endo...

Hey all, the recent thread from RachElizza promps this one, as well as some personal stuff. How long was it between when your bloodwork came back saying "CFRD" etc etc and you seeing an Endo for treatment? (p.s. I honestly didn't know that CF clinics [or at least mine] don't treat/"deal with"...

I'm wondering, how many here, when in the hospital, get a good RT that actually repositions you during postural drainage to target the different lung lobes? Because I've never have. They just sit you up and pound on your back (I don't do PD anymore anyways so it's no biggy to me). I was...

I remember my pulmonologist always saying that after age 18 many CF patients hit a rapid decline. I'm almost 20, and while I haven't necessarily taken a huge hit as far as CF I've noticed that I am a tiny bit worse for wear than I was a few years ago. I'm just wondering when/how I'll start to go...

I remember a few years ago my pulmonologist suggested taking Ibuprofen daily to help combat any inflammation in my lungs, but I never really got it into my routine. I'm just wondering what other OTC's you may be taking, why, and if they're working for you. I think it's fair to say that a vast...

For my 3rd clinical assignment I'm going to southern Oregon for 2 months. I'm seriously considering moving to Oregon within the next 1-2 years, which means new docs etc. While I'm in Oregon I'd like to take a weekend and go to Portland and check out the CF center there and talk to someone...

I was just at a week long physical therapy conference and attended a great 4 hour lecture on PT for CF. It made me realize how frustrated I am with my clinic and how lacking and basic the care there is. These PTs were more enthusiastic and more determined about treating CF than anyone I've...

Okay, obviously not really "mandatory" but it sure feels like it. I had an appt at the CF clinic yesterday and was told off by the RT for not doing the glucose tolerance test they had ordered a few months before. Why? Because the last test I did was a DISASTER, like horrifically, emotionally...

My cousin was telling me the other day that her boyfriend who also has CF has a really hard time taking his pills, which I found to be strange. Since I've been popping my own since I can remember it's super easy, and I would've thought most people with CF would be pros at this (apparently not)...