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My son (3 1/2 years old) recently had his first bowel obstruction hospitalization. He had the meconium ileus surgery at birth and has battled with constipation his whole life, which we've always dealt with at home. This time it snuck up on us...no constipation warnings. Anyway, so we got him...
My son started swallowing pills in early July. Yay! So we had the bright idea to try to get his reflux med in pill form (rather than liquid) for convenience purposes. He went from liquid Lansoprazole to Omeprazole pill. Insurance wouldn't cover Lansoprazole in pill-form.
Nine days later he...
Our son has had his G-tube for over a year. The first 3 months went really well. Then he stopped tolerating the 2 cans he was getting overnight, so we had to cut back to 1.5 cans. He can tolerate that, but hasn't gained anything.
We've tried different things, but I am open to all suggestions! We...
I saw so many posts about culturing PA for the first time and 2 week hospital stays for babies and toddlers that I wanted to start a new topic just on tips and suggestions. We had our first hospital stay in April when our son was 19 months old. It was very scary for us, as well as him. Here...
Our son gets 16 oz overnight through his G-tube and is having a hard time "holding" it until morning. He is upset that I started putting diapers on him at night again after we discussed that he is a big boy and "No more diapers!". I feel so bad for him. Any advice or stories? Is this just...
I have read that tonsils and adenoids can be among the organs affected when dealing with CF, but there is not much information out there about it. What experiences do you have? What were your symptoms? How were they relieved?<br><br>Thanks!<br>
Our 21 month old son has been vomiting once a day for about two weeks now. It is usually after lunch, when he is laying down for his nap, but not all of the time. His CF doctors don't know what is causing it. We have an appointment with his GI doc on Monday. I'm wondering if anyone here has...
We have an 18 month old foster son (soon to be adopted!) with CF. He is not gaining the weight he needs to catch-up to the growth curve. He is just below the 3rd percentile curve. We have had him for 11 months and he has had only one cold, so he is doing well health-wise. He has trouble with...
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