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My daughter is about to age out of her current CF hospital. She does not have a port at this time. They are predicting that she has about 2+ years before she will need a port. She is interested in getting her port in her upper arm when the time comes. Currently the only Surgeon we know who does...
My 20 yr old daughter cultured VRE (vancomycin resistant enterococci) from her last sinus surgery. She has not had any vancomycin given to her. The clinic and ID docs are not concerned and do not recommend any treatment. They are not concerned about her transmitting it to a non-CFer. She will be...
My daughter is 19 and in good nutritional status (5'5" and 140 lbs). She does a steriod burst about 4 times a year. Since she turned 17, her hair has really thinned and her acne has really gotten worse. The docs have checked her thyroid and vitamin levels and everything comes back normal...
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