Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. B

    Cleaning nebulizer cups

    Hi again.. one more question.. how do you properly clean your nebulizer cups to ensure that all of the pseudonomas/staff infection may be killed off? I recently bought a baby bottle sterilizer and it states on the box "sterilizes household germs". Do you think that this is sufficient enough or...
  2. B

    Nasal Polyp Surgery

    Hey everyone- Has anyone had to get a polyp removed? Can you tell me the different procedures that you may go through in order to get one removed and the recovery time? My boyfriend just got his first polyp and we have no idea what types of procedures he may have to undergo. Thanks!
  3. B

    scabs in nose

    Hello again.. My boyfriend gets scabs in his nose from time to time. When he blows his nose, the scabs loosen and bleed. Could these be polyps? Does this happen to anyone else?
  4. B

    night sweats

    Hello- does anyone here with CF ever get really bad night sweats?? My boyfriend gets them every night.. We asked his dr about it and he didnt have an answer for us.. is this CF related?
  5. B

    Are birds bad?

    My boyfriend and I want to get a bird together- We really want a cockatoo.. and I was wondering if anyone has one that has CF bc Im not sure if it is the best thing for him.
  6. B

    Seeing problems

    Hello again! :-) Another question I wanted to ask is if anyone has experienced seeing problems that may be due to CF or medications they are on. My boyfriend is on TOBI, Pulmozyme, Zithromax, and vitamins pretty much on a daily basis. Lately, his eyes have been irritating him- especially if...
  7. B

    Learning about CF

    Does anyone recommend a good book or movie about CF and ALL the aspects of it?
  8. B

    Types of Antibiotics

    Does anyone know a place where you can go and see what type of antibiotics treat different infections the best?? - Is there a book out or a website?
  9. B

    Pseudomonas smell

    Hey- I have one other question- Does anyone here have a pseudomonas infection that makes their breath smell? My boyfriend has for a little while now, and it's at the point where he is self-conscious to go out and talk to people. Does this mean he has a certain type of pseudomonas infection-...
  10. B

    Too many tune-ups?

    Hello everyone- I just joined the forum. My boyfriend is 25 and has CF. I think he is going to be joining the forum as well. I really never even heard of the disease before I met him, and I've tried to learn as much as I could about it. He has an infection, and has tried to beat it with...
Top