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I am seeking advice re CF clinics in LA. Due to the declining health of my daughter we are going to buy Ivacaftor (Kalydeco) until the Australian Government funds it. Vertex will not accept our Australian Drs prescription and we need to travel to the US to have a prescription issued by a US Dr...
Hi, I am in Australia and desperately trying to source Kalydeco for my 22yo daughter who has one copy of the G551D mutation. I am interested to hear of personal experiences from people in the US (and other countries) with taking the drug if you a copy of G551D.
We have started a group to try and...
Are there any other Australians that did not participate in the trial of VX -770 (Ivacafor - generic name or Kalydeco- brand name) who have successfully accessed this drug? My 22yo daughter has one copy of G551D mutation (the other is delta F508) and is experiencing an exacerbation of her...
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