Cystic Fibrosis Forum (EXP)

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  1. C

    Fev1 30's

    I cant stop crying as I write this. 14 years have gone by so fast and I am running all my memories of my daughter Alyssa in my mind so I never forget. Doctors told me that he is hitting a brick wall and does not know what to do anymore. Her Fev1 is not comming up even after a bronch. He says she...
  2. C

    Help

    I have a 14 yr old daughter with CF dx at birth. She has been hospitalized so mnay times in 2011 I lost track. Her FEV 1 has gone down in the low 20's. After about 2 -3 weeks in the hospital her numbers start to come up and she comes home. After about a month being home she goes back into the...
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