Cystic Fibrosis Forum (EXP)

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  1. P

    No light at the end of the tunnel

    My baby girl has been admitted to hospital and is now on IV Anti Bio but they dont know what is wrong with her. She is needing oxygen and her breathing is slower than normal. She will not feed. Her X ray has come back ok and i am waiting for her cough swab result... She is only 4 months and I...
  2. P

    Skiing in france

    My Husband Nathan and I just love going skiing..WE took our son Joe when he was only one and hope that he will take up the sport...I know my Ruby is only a baby at the Moment but is there anything to stop her from sking one day...?? I dont know how the high altitude effects Cfers????? WE usually...
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    Gene Therapy????

    i have been told by my doctors that something is in the offering in relation to CF...I have been told that they are looking at large clinical Trails where by Cf'ers will have to use a nebuliser maybe 4 times a year which will put the corrected gene into the lungs..My doc says its like money in...
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