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When Aven recieved her diagnosis, I decided to create a blog to help document our journey. I do not in any way, shape or form claim to be an expert or to have all the answers in regards to this disease, but as far as what we are facing....
I can tell our story. There are some blogs I have kept...
I am very new to the CF world. My 3 month old daughter Aven, was diagnosed with CF through newborn screening at 7 days old and was confirmed with DDF508 through genetic testing as well as sweat chloride test with result of 98 and 120 at 3 weeks of age.Eventhough we were experiencing loose and...
I believe today is the first day since May 18, 2012 that I have not cried. Our then 3 week oldbaby girl was diagnosed with CF through genetic testing after having two IRT counts of 296+ng/ml on her newborn screening. She has2 mutations- delta F508. We have seen her CF team twice now and have...
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