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Hallo,
I know there are several of us with this kind of mutation.
My genotype is very rare. 2789+5G->A + E585X.
I tried to enroll in the Denver study with Kalydeco (Ivacaftor) but I'm form europe, then it's too far from here. And no one would pay for the trips.
I'm 31, Pancreas Suff. MSSA and...
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