Cystic Fibrosis Forum (EXP)

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    Red Band Society

    Don't know if this was already posted, but a new show on Fox called Red Band Society has a boy with CF on it. The show sounds like it is about kids who have lived at the hospital for a very long time (years?) and I don't know of any CFers who are in the hospital that long that are not very,very...
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    Coughing up blood?

    I just started my IVF shots on Saturday to prepare for my surrogacy. Today I started coughing up blood, which I have never done. Has anyone had this problem? I really don't want to stop the drugs!
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    Going into hospital

    I am going into the hospital for a few days mainly to make sure I don't have an allergic reaction to the IV drugs meropenum and Collistin. I have been on IVs for over two weeks but they aren't working so I'm trying something else. I have a major fear of hospitals so I never stay in. I have...
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    Pgd??

    I am not sure if I am using the correct terminology but here it goes. We are planning to have a baby with the help of a surrogate. My husband was tested (I believe the 1500 mutation test) and he is not a carrier. With that being said, would you still test the eggs for CF before putting them in a...
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    Low AMH what to do?

    My husband and I were starting the process of having a gestational carrier surrogacy and I found out my AMH is .4, meaning my number of eggs is very low. The RE suggested against surrogacy. We are devastated. Does anyone have any experience with a low AMH and having a baby?Or has anyone done a...
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    Vertex 661 trial and CFRD

    Does anyone know if you can participate in any of the Vertex trials and have CFRD? I was just diagnosed and I was wanting to do the trial later on in the year.
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