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Hi there, I hope all of you had an awesome Halloween. We sure did. I'm a little worried about my son. We gave mercy on him this morning & let him skip Kindergareten to recover from the madness. Here's what's going on. The last week my son has had the worst stinky-stinky bad smelling gas...

Have any of you ever had a pet Taranchula? My lil man is turning #6, next month. I can't believe I'm even considering this:) I've been doing my reading on them. Curious if any of you have had one for a pet. Love any input. I don't see "it" causing a germy nasty issue. If I have "it's" home...

Hi there, My son is almost done w-his 1st round of Tobi. He also finished Cipro Friday. He cultured Pseudomonas at his last culture. My question is there anything I can do a head to setup home IV nurse care ahead of time? I'm praying like crazy he kicks it, but I always feel better if I have...

Hi there, Well, Johnny's throat culture came back with Pseudomonas. It's the first time he has cultured it. The doctor left a message on our phone saying a bunch of big words, and then added this strain is the "Good one to get". He sounds confident that we might have a chance on knocking it...

Hi Everyone, Quick question on planning out the upcoming school year. My son may be attending all day Kindergarten, and I have all the literature prepared. Been reading about 504's since the day we brought him has a baby. We have had IEP meetings in the past during PRE K. So, i'm prepared I...

We may be loosing our health insurance in two months, and being forced to buy family-private health insurance. I have spent weeks on the phone and researching. I think I need to accept that the best individual health plans regardless of our willingness to pay top dollar, are only going to cover...

Hi there, My Oh My, my lil #5 Year Old has turned into Mr. Knowledgable on the CF front:) During each holiday or football game he makes sure the entire room know he needs his enzymes, and why "My tummy needs extra help, because I have cystic fibrosis". If his lil sister is struggling with a...

Hi there, I'm trying to navigate through this and having a difficult time with it. Looking for some info or pointers. Anyone that has knowledge on insurance laws or advise on who i need to talk to. I'm sure my sons clinic social worker might have some suggestions, but I've learned much more on...

Hi there, Well my son started a new preschool this month. (Only 2.5 hrs a day) Things seemed to be going well, until today. During drop off his teacher informed me, "We are not nurses, we can not keep giving him his pill". My face probably turned 50 shades of red. I thought this was ironed out...

Hi there, this is SARAHSARAH253. I've been unable to login for months;( Tonight I needed to post, and just created a new account. I'm the proud Mommy of Johnny who is now 5 w/cf & Bailey a few weeks away from turning #3. Bailey doesn't have CF. Summer was great! Johnny has been doing awesome...