Cystic Fibrosis Forum (EXP)

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  1. S

    Questions???

    My 22 month old was diagnosed with CRMS on Febuary 26, 2013. I was told this is CF, they call it CRMS until they identify the mutations. He has been screened for the first 39 mutations and now we are waiting on insurance approval for the full panel that will be sent to Ambry Genetics and a CT...
  2. S

    21 Month Old

    My Son is 21 months old. He has been sick since he 4weeks old. Reoccuring Sinus infections, ear infections and bronchitis. I was told he had Laryngopharyngeal Reflux (LPR) and this was the reason for all of his sinus and stomach issues. They put him on 30mgs of Prevacid twice a day, (that is an...
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