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vertex drug Edited post

I can not tolerate TOBI (causes tightness) but a new cf doc mentioned this to me. Does the pod healer work for anyone when TOBI did not. Is it tolerated well? Cayston is the only inhaled antibiotic I take now. 2 weeks ago I started the vertex study drug for ddf508 so I think I may wait about...

I was recently prescribed budesonide to mix with my saline rinses by my ENT(Twice daily). I was curious to know if it has helped anyone. Planning on having surgery on my next admission but hopefully that will be a while. Any advice would be great.

Does anyone know where to get reasonable priced port supplies? I will be paying for them out of pocket since my insurance does not cover them. They were covered by my old insurance so I'm not even sure what a good price for the individual items would be . I have looked online some and it...

Will be having surgery soon and every time I have surgery I have my secretions become thick, green ,very hard to cough up, just plain nasty.I hoping an outpatient surgery won't end up with me being readmitted for a 2week stay. I won't be able to do my vest for a couple of days but I think I have...

Does anyone take mucinex(genric) ?Was told I could take 1200mg bid by cf nurse pract. Just wondering if it works for you or I'm I wasting my money? Thanks.

Hi. I'm new to posting but been reading for a while. I'm 37, married , mother of two(no cf), diagnosed at 3 months. I recently had a colonoscopy,upper gi scope and ultrasound done which now I have to have my gall bladder removed. It started about 1 1/2 to 2 years ago with my stomach bloating...

I'm considering getting a mobilaire 50 psi compressor. Tired of the vios quitting every 2-3 months. Is this still a good chose in a heavy duty compressor. I'm concerned about replacement filters , i read a post a few months ago from someone having problems finding filters. i just don"t want to...