Cystic Fibrosis Forum (EXP)

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    1898+1G>A Mutation

    1989+1G>A Mutation Hi, does anyone else have the single copy of 1898+ 1G>A as well as the copy of the delta F508 My daughter Chelsie seems to be really well since being since diagnosed 5 years ago not sure if this has anything to do with the mutations so i was just wondering if anyone else with...
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    Heel prick test

    Hi to all, can you tell me if the heel prick test is automatically tested now for CF, i thought i heard that it was, i'm from the UK, but a friend of mine has just had a baby and CF wasnt tested for, in the heel prick test, so i was just curious. Thanks Mom to Chelsie 5 w/cf
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    Pneumonia injection

    Hi can anyone tell me if their children have had the pneumonia jab, my daughter 5wc/f has had the flu jab but now has been mentioned about the pneumonia jab, Thanks
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    Any idea where to get a vest?

    Hi i live in UK but cant really find anything on the vest, does anyone know where or how to get one thanks.x
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