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Hi- I'm starting to use my vest instead of CPT and I was hoping for come advice... What settings do you use? I've made my way up from 16/4 to 18/6 in the last week. Whats recommended though? I'mk 5'6" about 130 lbs if that matters? Secondly, what techniques do you all use when trying to get...

Hi- I've had the same wheeze in the same place (middle-rightish side) for a week now....Coughing gets rid of it for a few minutes but then its back. I'm on Caystin now and do pulmozyme and xeonpenex. Anyone have a cocktail of those drugs plus PT/excersize they think will gt this outta my...

I was doing my nebs this morning and in the process of taking the cap off of the neb and putting in the pulmozyme i pinched the tip of my finger and got a papercut. Either xeopenex or pulmozyme must've got in it cause it stung like a you-know-what forever. I dunked it in a bottle of water but...

Just thought you all might want to see it- just saw a preview on TV. even though its not specifically "CF" it's still related- plus, i've never seen anyone except myself do them!

My dr. switched me to HTS and Colistin instead of TOBI because the TOBI irritaated my lungs too much. that being said, any tips for my new drugs?

i'm starting the process for a pump and was wondering- my ratio for insulin:carbs is 1:20.... i get low more often than high so im hoping to start my bolus lower. what were people's ratios before they got there pump? then, what was your bolus rate? Thanks.

In housing selection a few weeks ago (lottery system) my suite was placed in a half-underground room. The windows are small and supposedly there was a flood there (thats why there was all new furniture) and bugs. I'm concerned about mold/mildew since added to the water damage the building is 40...

The only major 'machine' I need to bring is my nebulizer, which im planning on checking under the plane. I dont need to refridgerate any neb meds so that'll be easier to handle. Any packing tips or getting-by-security-smoothly tips? etc. etc.

My dr told me to stop TOBI because my PFTs went down and said that with about 5% of patients, TOBI affects them badly and doesnt actually help/ Im going back to re-test in a month after being off of it. Anyone ever have that happen to them?

and how often do you clean them? I wash mine in the dishwasher after i use them once is there a different way to do it? (that is inexpensive) EDIT: i'm a college student- so i have access to a dishwasher (its old), but only for this year. next year i do not. i have a very small microwave too...

I get body aches very suddenly sometimes and sometimes gradually...and my first inclination is that they're just from my body fighting something off... but i've gotten them so much recently (granted i've been sick a lot recently) i wonder if there could be any other reason. anyone have any...

so i've been having a few problems with my vest that im just starting to get fed up with... first of all, my chest and stomach get so red from the irritation (especially in the winter with the dry skin). then, my arms get the circulation cut off... so i know im wearing it wrong. but don't...

hey everyone- i know a few people have been on here asking for your votes. well, now theres only 2 days left to the competition! so if you could take a second and press the link, then 'vote for me', i would greatly apprieciate it <img src="i/expressions/face-icon-small-smile.gif" border="0">...

hey everyone- so i went to health services and they confirmed that i had thrush (im on TOBI and two abx so it wasnt that surprising) but i still havent ever had it cuase im usually good about brushing my teeth after TOBI. anyways, i think i have a yest infection. i've had them a lot before and...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.solvaycaresscholarship.com/winners-profiles/katarzyna-r.php ">http://www.solvaycaresscholars...files/katarzyna-r.php </a> Hi Everyone! Last spring I applied for this scholarship and to my surprise I got it. To get additional...

can i?? i have cfrd and cf... anyone have any comments?

does anyone know if the dosage for creon and ultrase are the same? example: i take four ultrase MT 20's with meals, if i were to switch to creon, would i still take four creon 20's? or would i possibly take creon 5 or 10? thanks.

So tonight has been one of the most exciting nights in a while. It started out with my best friend and I trying to find something low-key to do. I had picked up a movie from the store earlier today so we decided to watch it. At first it didnt seem that great, although we had ourselves to blame...

hey everyone... so i caught it. the flu. and i tried SO hard not to! good timing... i got it on the first day of spring break. anyways, i went to the ER saturday morning cause they wanted an x ray to make sure it wasnt an infection. they did the test and i have flu type A. soo.. has anyone had...

I have it again... for a second time in about two months. Last time i had it, it was diagnosed. I went on to have it 3 different times in about 4 weeks. it went away for a complete coupel days and then came back. well, my dr finally asked me to try going off birth control...so i did, and it...