Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. B

    Pancreatic Issues and Orkambi

    So I am having stomach issues since I started taking Orkambi. It seems that when I increase my dosage of zenpep these issues subside on their own. Yesterday, I asked my doctor if I could up my dosage of zenpep, currently 13 per meal, by 1 or 2 pills and was told that I could not. His response...
  2. B

    Open frontal sinus surgery

    Hey, I was wondering if anyone could shed a little more light on the recovery time after an open frontal sinus surgery? I am going to have this done next week and I just want to try to get as much info about what to expect before this happens. Any information would be appreciated. I was told...
  3. B

    Transplant/cepacia

    I was wondering if there were transplant centers out there that are willing to do a transplant with someone who has cepacia? I have had it for 25 years. Doesn't really cause me a lot of trouble but I wanted to know if there are options for me when that time comes.
Top