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Has anyone ever had the phrase atypical form of cystic fibrosis thrown at them?

So a few months back i posted about my daughter and these sweat test. Finally got in to see the CF doctor personally. He looked at my daughters results ans told me flat out he was very baffled on every thing. He said that he has never seen someone have 2 sweat test done at different times and...

Baby girl had her sweat test done today and came back once again borderline. Waiting on her blood work to come back. It's been almost a week now. Hopefully it will be back soon. Not sure where we go from here. We are in the process to getting a new pulmonary dr. Can anyone tell me....on an...

my daughter is in the process of multiple sweat test for a diagnosis and just had her blood work done today. I have a thread in newly diagnosed on everything that is going on with her. I guess Im mainly here to ask about gene mutation. from what I have read online about cystic fibrosis is the...

my daughter is in the process of multiple sweat test for a diagnosis and just had her blood work done today. I have a thread in newly diagnosed on everything that is going on with her. I guess Im mainly here to ask about gene mutation. from what I have read online about cystic fibrosis is the...

So last week I posted a thread on everything going on with my daughter. Long story short we had one sweat test done, came back elevated/positive for CF. Pulmonary doctor sent us to a CF center had another sweat test done. They actually did 2 different types yesterday. Results came back...

Any body have any ideas on how to give my 21 month old her nebulizer treatment without fight? She was good first few days now she screams hits, gets so bad she start coughing so bad ? I've tried letting her play with her tablet, letting her "be a big girl and hold it" tried bribing her with...

Let me start from the beginning.Last December my daughter was diagnosed with malabsorpation. She was 10lbs at 7 months old. We seen a gastric specialist. Changed diet etc. She gained weight and doctors were happy. When she turned a year old in may we discovered she is lactose intolerant. It...