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Hi, My son has a upper respiratory virus and sore throat. He is not coughing but is productive during his airway clearance (huff coughing and vest). I'm curious...What is your clinic's protocol for treating with antibiotics when you or your child has an upper respiratory infection? Thanks, Tom

Well, our doctor called and informed us that our son's liver enzymes are elevated. He has been on Kalydeco for 2 1/2 months. The doctor contacted Vertex researchers and they told her that he needs to be monitored every week to determine if the enzymes are on the rise or just temporary adjustment...

Has anyone attempted to get Kalydeco approved by their insurance company? We are going to my son's clinic appointment tomorrow and will be discussing Kalydeco. I called Vertex and downloaded a form that the doc needs to fill out and fax to Vertex. I am nervous that my insurance company will deny...

<P>After this last clinic appointment we are now shopping for a new CF doc.  The relationship has become more of a control issue for our doctor than my sons health.    Communication about appointments and test results are not clear and always need to be initiated by us.  When we ask legitimate...

<P>This statement was in a recent press release for vx-770</P> <P> </P> <P>Vertex plans to make VX-770 available to the G551D mutation subpopulation prior to potential FDA approval, as early as July, pending FDA review and approval.</P> <P> </P> <P>Does this mean that it will be available for...

<a target=_blank class=ftalternatingbarlinklarge href="http://investors.vrtx.com/releasedetail.cfm?ReleaseID=551869 ">http://investors.vrtx.com/rele....cfm?ReleaseID=551869 </a>

I found this on another board and though that I would pass along this information. "Dr. Felix Ratjen (from Germany, now director of the Toronto Hospital for Sick Children CF clinic) gave one of the medical presentations at our recent Ontario Provincial Association Meeting (a division of CCFF)...