Cystic Fibrosis Forum (EXP)

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  1. A

    bi-pap?

    I don't hear much about bi-paps in here except when it comes to the "end". I have been on a bi-pap at night for like 10 months now. I was just wondering if I am just much sicker or if other people use one too?
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    Heart problems?

    Is it common for people with CF to have heart problems too? Yesterday my doc asked me if my feet are ever swollen & then she mentioned conjestive heart failure- I have never noticed it, but I do notice that sometimes my ankles are sore and look a little puffy. I was looking up the symptoms of...
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    Brighams

    I know some of you have gone here for the transplant program- I had my first visit today & I am going to be starting the eval. soon- they told me it takes 3 months for the process...is that true? I thought it would be a lot shorter than that. I know there is a lot of testing to do. Just wondering...
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    B. Cepacia

    Does anyone know if this can come and go? I am going to a new clinic on Wed. and they called me to tell me I have to wait in the hallway when I go there because I cultured it back in 2003, but I guess only once more since then and all the rest have come back neg. for it. Its really concerning me =(
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    blood sugar

    I am on prednizone for a couple weeks- its making my blood sugars real high. Im eating like a cow lately, but I got on the scale tonight & my weight is down (which is sooo hard for me to maintain anyways). They "say" I have CFRD, but unless Im on pred. my blood sugars are always perfect. High...
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    pictures

    I have never introduced myself but I go on here a lot- I am Amy 21, from Massachusetts, I was diagnosed with CF when I was 2 months old. I have had a pretty healthy life till I was about 18- then it starts to go downhill. Right now I am a senior in college & engaged to a Marine- the wedding is...
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    saline

    well I did my first saline treatment today- WOW!! did that make me cough like a maniac, but I felt good after. My only complaint is that it really bothered my throat- does anyone know what I should do to maybe make it a little less annoying? like maybe suck on a candy or something?
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