Cystic Fibrosis Forum (EXP)

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  1. J

    Ataluren - is here someone in the study - can you PM me?

    Hi, I am just wondering if someone in the forum is in the clinical study for Ataluren (PTC 124). Can you PM me your experiences, thanks.
  2. J

    Please help, which ULTRASONIC NEBULISER do you use/do you think is the best?

    Hi, now I nebulise with Pari Eflow Rapid (about 20ml 7% Hypertonic saline + 10ml 0.9% saline solution in the morning, 15 ml 7% HS + 10ml 0.9 SS at the evening), I find Eflow Rapid great<img src="i/expressions/face-icon-small-smile.gif" border="0">, but only when you have to nebulise less ml...
  3. J

    Which NEBULISER (+jet compressor, ultrasonic etc.) is the BEST

    Hi, <b>The market is now full of many (new) nebulisers, jet compressors and ultrasonic nebulisers too... Which nebuliser do you find the best? What are your experiences with it? </b> <b>What for a medication can you inhale in it?</b> <b>Is the cleaning and desinfection simple?</b> <b>How...
  4. J

    What are yours experiences with GSH(Glutathione)... and with DHA?

    Hi, I have searched some information about GSH(Glutathione), it looks good and I want to start take it (if it will be available in Europe). I want to ask you, what experiences with taking GSH do you have. What form and amount of GSH do you take(capsules,drops,inhaled drops?). Do you have any...
  5. J

    What are yours experiences with GSH(Glutathione)... and with DHA?

    Hi, I have searched some information about GSH(Glutathione), it looks good and I want to start take it (if it will be available in Europe). I want to ask you, what experiences with taking GSH do you have. What form and amount of GSH do you take(capsules,drops,inhaled drops?). Do you have any...
  6. J

    What experiences do you have with Hypertonic saline and Azithromycin?

    Hi, I already 4 weeks inhale about 15ml hypertonic saline every day with Pari eFlow rapid nebuliser (and about 20ml solution saline and 2,5ml Pulmozyme ) . I supply with that Amiloride (Amiloridi chlorati 0,006...Natrii chlorati 0,18...Aquae destil. ad 20,0 ml). I have read that in some...
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