Search results

I would love a reminder how to send a personal message - I go to personal message and type in the person I want to send a message to and cannot get past that first screen. This feature used to work for me, but for the past few months all I can do it respond to personal messages - grateful for...

Tomorrow is the annual walk for CF and evening benefit for the Cody Dieruf Benefit Foundation. Cody was well loved in our community. My daughter was a younger ballet dancer who was touched by Cody's kindness. Her family has established a foundation to support medical care for local families...

I am wondering what alternative/complementary health care approaches others with CF use. I have had monthly acupuncture treatments for over 12 years - starting with concerns about persistent sinus infection - which was several years before my CF diagnosis. Keeps me well, I think. I've also...

I am on a trial of the Smart Vest. If you have one, how do you like it? Have you used others? Any comments and comparisons?

Because I am a health educator in family planning and because I now know I have Cystic Fibrosis I have found a new direction for my work and am on a quest to learn about contraception specific for women with CF, are there methods we should consider first? methods to avoid? what to consider when...

some encouraging news at <a target=_blank class=ftalternatingbarlinklarge href="http://online.wsj.com/article_email/SB118218701841239314-lMyQjAxMDE3ODEyOTExODk3Wj.html">http://online.wsj.com/article_...DE3ODEyOTExODk3Wj.html</a>

I have some previous issues of CF Roundtable, a newsletter for adults with CF. I will send them to anyone who wants them - send me a PM with your address and they will be "in the mail"!

The Cody Dieruf Benefit Foundation was established by the family of Cody Dieruf to support local families to get CF related health care, including travel. There is no CF center in Montana. On June 16th in Bozeman, Montana the second annual march and fundraiser will take place. More...

Yesterday, while working to re-establish a garden - turning over soil, picking out weeds and putting new plants into the garden I began to wonder what might be in the soil I was tossing around. So, in the midst of my spring energy I began to worry about the potential bacterial lurking in the...

I have a few friends who spend time in an online place, Second Life. The Esiason Foundation web site has an introduction to a place for CFers to congregate, CF University. Watch the video at: www.esiason.org

I have been having incredible hives & redness for the past two days, likely culprit is Cipro. I've already gone through Levaquin. I'm still pretty new at this; what oral antibiotics are left for pseudomonas?

A few months ago there was a information given about symptomatic carriers and a link. I sent it to my sisters, but neither of us can find it now. If you have the link, please respond. Thanks.

Does anyone know the history of learning about CF? I have read that it has only been known for about 50 years. I'm curious to learn more about the beginning of recognizing CF. How did it happen?

I was looking for the student planning to talk about CF at school - can't find the post. Burn, on the adult forum, has created a slide show on CF which is available at <a target=_blank class=ftalternatingbarlinklarge href="http://www.verzend.be/v/7686945/1_CF_Slide_Show_1.wmv.html...