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My 5 year old son started school last week (5 year old kindergarten). Well his teacher bought them all little toothbrushes and covers. She wrote their names on the brushes and the covers. But I think once they are done brushing their teeth and putting the covers back on they go back into a...

My 5 year old son with cf woke up this morning with a low grade fever of 100 degrees. He then told me that it hurt on his left side when he breathes in. I am hoping that after his treatment it will feel better. But I am concerned as he has never had this complaint before. It is not stopping him...

My 5 year old son is going in next Wed. for a tonsillectomy and sinus surgery. They will clean out his sinuses and remove polyps. I am dreading it very badly. He has not been in the hospital at all since he was 23 months old (and that was not CF related). We were told there is a possibility he...

I am trying to find ratings on the CF clinics but when I go to the CFF website I can't find anything. Can someone please direct me or post a link. Thanks!!

I am thinking of trying a different clinic for my son. I live close enough to Georgia or Tennessee to be able to take my son to either state. So I was wondering if you go to clinic in TN or GA if you could give me some info on the clinic...do you like it? What do you love about and what do you...

My son had his clinic visit yesterday and it didn't go as good as I had hoped. I have been freaking out a little and am needing some questions answered. First of all he did gain weight and his BMI is now up to 30% but of course they want it to be 50%. The docs and I am not worried about this as...

Well the baby of my 4 children and the only one with cf turns 5 today. 5 years ago today began the hardest part of my life thus far. What a journey it has been...but what a blessing he is! Oh how I love that baby boy of mine. He is growing up so fast...if only I could slow time down just a...

My son had clinic today. His appointment was at 2:00 and we finally got in a room about 3:45....that is 1 hour and 45 minutes in the waiting room with a bunch of other cf kids and sick kids. I spent that long trying to keep a 4 year olds mask on and trying to keep him occupied so he didn't...

Hi! We recently discovered that my 4 year old son with cf is no longer allergic to milk and eggs. He has finally outgrown these allergies and now he needs to gain more weight. I was wondering if anyone could provide some high calorie recipes that they have had success with. I have been giving...

My son was prescribed prednisolone today after being sick for the last week. When I got home with it it said to give him 10 ML daily for the first five days and then 8 ml for 1 day, 6 ml for one day, 4 ml for one day, and then 2 ml the last two days....well that seemed like alot to me. So then I...

Can someone please tell me the name of the powder that helps add calories to food? I know there is one that is milk free but i can't think of the name of it. We are all of the sudden having weight gain trouble so I am trying to think of something to help. He is allergic to milk and eggs. Carrie

My son is having some different looking bowels movements than he normally does. They sink but have the orange greasy stuff floating on top. So if it sinks but is oily what does that mean? I have been adding more butter and oil to his foods in hopes of him putting on some more weight. I thought...

In your opinion which is better to do when sick? My son has the vest but sometimes I think he gets up more junk when I do manual chest pt. He currently has a junky sounding cough and I can't ever decide which one to do? Carrie

My 4 year old son has the Respirtech Incourage System. I was wondering what pressure others set theirs at? I set my sons at 80%. The guy at Respirtech told me most children his age can tolerate 80% and that the higher the pressure setting the better the treatment. I was just wondering what...

I don't post on here near as much as some of you but I do read all the time. I wanted to post an update on my son. He is 3 1/2 years old and was diagnosed with cf at 2 weeks old. He had an awesome clinic visit last Friday. His oxygen saturation was 99%, his lung x-ray showed great improvement...

I just wanted to say how proud I am of my 3 year old son. He can now swallow his enzymes! I am so excited...how much easier this will be!! YAY Sawyer!! Carrie

We live in Alabama about 1 hour from the Georgia line. Well I got up this morning and looked outside and there is a haze of smoke. I can smell it and see it. I am a little concerned for my son. I know he probably does not need to go outside to play but I have to go to town today. Anyone else...

We live in Alabama about 1 hour from the Georgia line. Well I got up this morning and looked outside and there is a haze of smoke. I can smell it and see it. I am a little concerned for my son. I know he probably does not need to go outside to play but I have to go to town today. Anyone else...

In the last month or so my 2 year old (soon to be 3 year old) has started having constipation issues. He may be regular for 3-4 days and then gets so constipated. His doctor has prescribed Miralax for him to take daily. But I just hate the thought of him having to be on meds to keep him regular...

Hi! I have a 2 1/2 year old son with cf. We are getting ready to paint the inside of our house so that we can put it up for sale. Does anyone know if it is o.k. for him to be in the house while we are painting? And if not then how long does he need to stay out of the house after we are finished...