Cystic Fibrosis Forum (EXP)

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  1. S

    MRSA FREE !

    at my last hospital visit i somehow caught mrsa i believe it was from the hospital because they are horrible but whatever and now turns out its gone this visit mind you my last visit was in august ! too bad they didnt take me off of isolation this visit ...... i hate that hospital but on the...
  2. S

    Okay I need your HELP !

    I don't want to seem over rated or to sell out the disease many people suffer with throughout the world, but I believe if there were a segment on MTV of True Life: I Have Cystic Fibrosis it would bring soo much more awareness to the public about this horrible disease and the struggles we do have...
  3. S

    Do you need a cathiter to pee?

    Do you seriously need a cathiter to pee after surgery because if thats the case...i refuse to EVER get a transplant that draws the line for me, i'd honestly rather die with my lungs at whatever age that may be then be tortured for weeks with chest tubes and cathiters and iv's and annoying fcken...
  4. S

    Need Info On Ports..

    Ok well I'm debating on wether i should get a port or not next year. I've had pic lines in the past but recently the pics havent been working and my arm got infected. My doctor said a port would be easier instead of staying in the hospital for 2 weeks you just get it at home. Im concerned with a...
  5. S

    Is this bad... :(

    Is it bad i havent done my tobi and pomo and vest in over 2 months...i mean i would do it once in a blue moon and i mean blue moon. but is it bad. i know i should be doing it its just im 16 and i just think to myself what it would feel like to live a normal life like people who dont have cf and...
  6. S

    anyone know how to gain weight besides a feeding tube? or how many scandi shakes to drink a day to gain 2lbs in a month

    anyone know how to gain weight besides a feeding tube? or how many scandi shakes to drink a day to gain 2lbs in a month how many scandi shakes should i drink a day for a month so i gain 2lbs in that same month?
  7. S

    Ok so i'm starting a fundraiser for CF and CFRD

    hi i'm gonna start a fundraiser for cystic fibrosis and cystic fibrosis related diabetes does anyone have any sites they know of that sell items that are from a cf or cfrd foundation or that are cystic fibrosis or CFRD related
  8. S

    wat is the life span for someone with cf?

    hi i am just wondering what the life span is for someone with cf?
  9. S

    cystic fibrosis related diabetes? what triggers it?

    hi i am alyssa 14 yrs old and have had cf since i was 1 or 2 i was diagnosed with cystic fibrosis related diabetes 3 months ago and if you could answer my question (topic name) it would help a kid out a lot thank you
  10. S

    tune ups?

    anyone going 4 a tune up i am in july =]
  11. S

    Anyone have cf with liver and splean problems and digestive problems and respiratory problems and cf diabetes?

    Anyone have cf with liver and splean problems and digestive problems and respiratory problems and cf diabetes? hey i'm alyssa i'm 14 yrs old and i have lived with cf since i was 1-2 yrs old i was diagnosed with cystic fibrosis related diabetes 3 months ago it seems i have all the cf problems...
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