Cystic Fibrosis Forum (EXP)

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  1. C

    Colds and infants

    My 6 month old grandson with cf has his 3rd cold and really struggles with nursing and a congested nose. Is there anything besides saline drops to use on his cold. I have heard that a decongestent isn't good for his cf, any help with this would be wonderful. Thanks
  2. C

    What is CFRD and FEVI

    I am wondering what CFRD and FEVI are? Any help would be great. Thanks - CC
  3. C

    Grandson gaining weight

    Yesterday, our grandson John went to our CF clinic for his 2nd visit there, he's just over 1 month old. He gained 2 lbs. in two weeks, yippeeeee! We're very happy. His doctor increased his endzymes from 1/2 capsule at each feeding to 3/4 because he still can get ravionous 1-2 times a day...
  4. C

    looking for info on mutation 1717-1g2a

    <img src="i/expressions/brokenheart.gif" border="0"> My new grandson was diagnosed last week with two mutations, F508 which I can find info on and 1717-1g2a which I am looking for info on. I am a sibling of two cf holders, 1 male who didn't survive, he died in 1983 age 17 and my sister, who is...
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