Cystic Fibrosis Forum (EXP)

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  1. L

    how to save my life.

    well lately, iv'e been looking at all the memorials and stuff of children my age that died from cf.. and they are so depressing, because a lot of them looked so healthy. iv'e had a collapsed lung in the past, so it's hard for me to do some stuff. my pfts right now are at 47% which i think is...
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    CF Stomach Aches

    So, I don't take my pills a lot whenever I eat dinner because I forget, but you don't need to lecture me on it... Because I know what everyones going to say. But the question is, is do you know how to make it feel better?
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    There has to be a God.

    Okay, so recently... my friend Merritt & I have met, for the first time. I drove up to oregon to meet her. Well, Merritt and I are in a Candy shop at the Bayfront in Oregon.. and the song.. "Angels in Waiting comes on". (Merritt has CF too btw.) I mean, that song isn't even popular AT ALL! But...
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    Predisone?

    <font color=ff22aa> Hey! My lungs have really never been that bad. I know that a lot of CFers have it a lot worse than me so I never complain. Well, my grandma always used to say. "Don't say something bad, because then it will happen." And she is a strong believer in that. Well, when I got done...
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    Problems with enzymes such as Ultrase MT(s)?

    The title just pretty much states it. I have been taking Ultrase MT20's for quite a while now, about 5 years... All of a sudden I have had problems with them. If you guys remember I had posted a topic about me having stomach problems. Well we had researched it and the problem was, my enzymes...
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    CF and Bowel Problems?

    Hi, I don't post here often... but when I do, it's usually something that is bothering my health. So here we go... Iv'e had Cystic Fibrosis ever since I was 3 months old and ever since then iv'e rarely been hospitalized. Iv'e only been in for a tune-up twice in my life, once when i was...
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    The Enzymes Pancrease MT 20 im having problems...

    My doctors have recently put me on these new enzymes. I have taken them when I was a toddler, and a infant. I used to take Ultrase MT 20 before these. But I Have been getting the CF stomache aches and I have had to go to the bathroom alot more with these pills. I do not think they are working...
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    Solution to those nasty shakes...

    Hey, I am a 15 yr old w/cf and I know what it is like to experiance those nasty milkshakes that the Doctors give you to gain weight. these are some supliments Iv'e tried...Ensure - Very thick and vitamney (1/10)Boost - Ew. (0/10)Scandy Shakes aka Sandy Shakes - Does not mix well, But if you put...
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    A girl with C/F to talk to...

    Hi, my name is Alyssa Powers, and I have CF i am 14 yrs old. I really want to talk to a girl around my age... 12-15 to talk to. I want to be able to bond with people and help people, and them help me. I tried getting ahold of Kayla Whitly, But she did not asnwer her phone. so If you can drop...
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