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Has anyone had any experience with the tranplant team at Stanford? It's getting close to time for a tx and my insurance will only pay for it if I have it done at Stanford.

Does anyone get sob after taking colistin? I do, so I decided to try taking my advair <i>AFTER</i> colistin instead of before. It make a world of difference. Should give it a try.

I'm leaving my current clinic(they aren't up to speed). Any one know anything about the clinic in Boise Idaho?

Does anyone have trouble with their ribs? And if so have they stopped using the vest to see if that helps? I've been having trouble with my ribcage hurting and my Doc. wants me to stop using my vest for one week.

I was able to go hunting again. And this time because I was using oxygen I was able to walk in the mtns. 5 miles in one day. I haven't been able to do that in 10 years or so. It felt oh so good to have that ability. Didn't get an elk though =(

Has anyone ever had a problem with their skin peeling on the fingers and roam to the hands. It happens about once a year and I can't think of what it could be. (i'm not on any new meds.)

Man, I may have to do another tune-up and It might mess up my hunting season. It SUCKS!! Was looking forward to it so much, I was gonna use oxygen when I go out hunting, oh well, I may get lucky and won't need it.

Hey All, Hope everyone is doing good. I would like your opinion. I have a myspace page w/ pics and I want to know if everyone thinks I look very healthy. It would be nice to get a non-family point of view. Thanks <a target=_blank class=ftalternatingbarlinklarge...

anyone have trouble with their knees? and if so what to you do to relieve the pain.

i finally reached my goal that i set nearly 20 years ago. To make it to 30, now i'm shooting for 35. Wish me luck.

i just had a glucose test done, and was wondering if anybody knows what the numbers should be to show that i don't have CFRD.

were any of you thin as a child? small arms, legs,etc. and were you embarassed to show your arms at school. i always wore long sleeved shirts, even when it was warm out. always wondered if i was the only one to do that.

i have the hill rom vest w/ the full vest, was wondering if anyone uses the chest vest instead. and if so how to you like it.(does it work good?)<br> <br> oops spelled title wrong, only been spelling for 24 years<img src="i/expressions/face-icon-small-happy.gif" border="0"><br> it was (fest)

i just got my acapella today and i love it. it is so much easier to use than the flutter.

i just got back from hunting. loved it, i was able to walk in the woods(climb hills etc.)<br> was worried i wasn't going to be able to do it, because i missed last years hunting season cause i was in the hospital twice. PFTs were in the high 20s. but i worked hard for the last year and was able...

anyone take zithromax? and if so, do you notice any changes like improved lung function and weight gain. oct. 16 will be my 2nd PFT since taking zithro.(hoping for an improvement). and i have put on 23lbs. since i started taking it.

anyone have trouble with tobi. for me like a week into my 28 days on tobi it feels like my lungs are inflamed and it gets hard to breath. anyone else have this problem, and if so any idea whats causing it?

today i was able to run hard for the first time since june of '05. felt great.<br> just wanted to share.

anyone get light headed or jittery if they haven't eaten in a while? and if so what food seems to work the best for you. 

i posted this joke because life is too hard without humor. if anyone doesn't  like it i'm sorry, but i thought we a could all use a laugh.