Cystic Fibrosis Forum (EXP)

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  1. M

    How do we CFers die?

    I'm so curious. I read a book about a girl who died with CF, but I want to know like exactly what happens, do you like suffocate, or just fade out? Does it hurt? Anyone know anything?
  2. M

    Do you ever?

    Sometimes Ill be asleep and wake up suddenly with kind of a moan. I'm pretty sure this is because I stop breathing in my sleep and it's a reaction to it. It typically only happens when Im kinda sicker than usual. I'm just curious, does this ever happen to anyone else?
  3. M

    Antibiotic Symptoms??! helllllp.

    Okay, so like 6 months ago i was in the hospital and I got IV seftas and tobi, a couple days later my fingertips burned me whenever I touched practically anything. Then my hands became itchy for about a week or 2 and then my WHOLE hands peeled. At first I thought it was the weather change or...
  4. M

    does anyone here?

    have a portacath?
  5. M

    anyone have pnuemonia right now?

    Cuz I do, and It's gay. I have a feeling that I'm gonna be in the hospital for my birthday.
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