Cystic Fibrosis Forum (EXP)

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  1. Y

    Frustrated

    I posted a topic on my 5year old daughter back in October, we were in the hospital for a pseudomonas infection, and swine flu. She has been sick since she started school, and after the hospital stay with IV antibiotics followed by another 21 days of Cipro, and 3 rounds of other antibiotics she...
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    Lost

    I have a beautiful 5 year old daughter with double DF508 mutation. She just started kindergarten, and absolutly LOVES school. Unfourtunatley, school hasn't been so good for her health. In Pre-k, she missed alot due to illness, and this year has missed over 5 days of school. She got sick on the...
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    Very Hungry 4 year old.

    I have a 4 year old daughter. Her biggest problem with CF thus far has been malabsorbtion. Currently she is taking both Ultrase and Creon, with no big changes in her eating habits. She is 29 pounds and holding for the last 6 months. She eats like a grown man, on top of the bolus feedings of her...
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    hyoglycemiap

    My 3 year old daughter had a fasting glucsoe tolerance test done last week. We got her results today and they weren't what we expceted. Her inital blood sugar was 88, 2 hours after drinking the sugar supplement her blood sugar was 50. Has any body else experienced this and how did you treat it...
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    bunch-o-problems

    My three year old daughter was diagnosed at 5months, for the fisrt year her lung problems seemed to out weigh her digestive issues. Not the case anymore. She weighs 27 pounds, she takes Ulatrace #12, 4 with meals and 2 with snacks. She drinks peptime Jr as well. All in all she takes in any where...
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    not sleeping and leg pain

    My 3year old daughter is not a sleeper at all, we have to give her medicine most of the time to help her sleep. I was wondering if anybody else with CF kids has this problem and what they do. Also, she had just in the last month or so started complaning of leg pain. Most of the time I can rub...
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