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hello My son, Eli, just learned how to swallow pills. yay!! I'm thinking that we should now switch over to a pill that is swallowed rather than chewable. We get can get the sourceCF softgels for free through the Solvay Cares program but I am wondering if the AquAdeks is better? When you go...

Hi saveferris2009 mentioned that she/he(?) used a countertop dishwasher just for nebs that reached over 106 degrees. I would love to get something like that if I could be assured that it worked as well as boiling. Does anyone know what questions I would have to ask to know if this would be...

I was talking to my doctor about selecting a fertilizer for my lawn that did not have chemicals and she told me that some of the natural or organic types have cepacia in them. I asked if it would be OK if cepacia was not found in the ingredients and she said that it was not always listed. Well...

Hello I'm posting about my 2 yr. old son Eli here because I'd like to hear from you adults with CF that have 'been through it'. Here are the pieces of the puzzle. 1. His lungs are doing great, no cough. He had a bronch in July which showed his lungs looking good and a negative culture. All...

We usually boil our nebs each night and while I think it does a great job it's a bit dangerous. DH has already melted them once and we had a close call the other night. I'm really interested in trying a bottle sterilizer or the germ guardian but I would love some data about if it is as effective...

Hello As my first and only child has CF I am trying to learn about all of the different avenues available for having a second child. I was wondering if anyone had any experience doing IVF with PGD. Please feel free to post here or privately. Thank you very much

Hello I know an adult who will be getting a vest soon and she has breast implants. I was wondering from your experience which vest might be the best fit for her? She is very slender also. Thank you

Hello everyone I just wanted to let you know about a new CF support yahoo group. It is for parents/families of children diagnosed with CF that live in the Chicagoland area. It's called Chicagoland Cystic Fibrosis Parents And you can find it here...

I am not an adult with CF I'm a mom of a child with CF. Recently my doc. told me that it's best to wait 15 min. after eating the enzymes to eat. I was just wondering as adults if you do this or if you know exactly why this would be important. Have you done it both ways and noticed a...

Hello<br> <br> We live in Chicago with radiator heat and our house is very dry right now.  I'm wondering what we should do as far as humidifiers in regards to Eli's CF?<br> <br> Anyone know what the protocol on that is?<br> <br> Thank you<br> <br> Sarah

Hi<br> <br> I was just wondering if anyone had ever heard of anyone with CF having their teeth turn gray.  My son Eli who is one went into the hospital with two perfectly white teeth.  He was put on tobramyacin and zocyn IV which he is still on right now via picc line.  Other than that he is on...

Hello<br> <br> First I have to apologize for asking so many questions.  This is so new and I just have so many.<br> <br> So I am starting to get a good understanding about how we will need to do meds/cpt to keep Eli's lungs functioning well.  The part that I'm really worried/confused about now...

Hello<br> <br> I am really new to all of this.  My son Eli who is almost 1 yr old was just dx two weeks ago.  Before he was dx I used to take him to a playgroup once a week with about 4 or 5 other moms and their babies.  We were very lax about letting the kids play with toys that the other had...

Hi<br> <br> My son was just dx two weeks ago so I'm really new to all of this.  He cultured psuedo and staph.  Since he already has it do we have to be very concerned about him catching them again?<br> <br> Sarah

Hello,<br> <br> I tried to intro myself on the 'newly diagnosed' board but it didn't quite work.  <br> <br> I'm 29 yrs old and a mom to my wonderful baby boy Eli who was just diagnosed with CF two weeks ago.  Eli will be one year old on October 31rst.  He was born full term and gained well up...