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i should start with the good news that aidan finally got approved for medicade. i feel like a miracle has happened to us. now onto the bad news we have so many hospital bills and im going to be honest here its bills from the past four years we still cant pay. the health insurance weve had in the...

<P>hi every1. so we are just ending 6 freaking weeks of abx to fight off yet another sinus infection. this is like his 6th one and he just had sinus surgery in june. and when i say 6th one that all included over the past 18months. so yesterday he wakes up with a cold. ugh i cant believe it. hes...

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<P>hi everyone, so 2 months back aidan woke up at 2am screamin and crying that both his legs hurt so bad. i asked him to show me where and he pointed out in both of his thighs. so, in bed with me for the rest of the wee hours we were up while i was massaging his legs and he was struggling so bad...

i am in need of going to a support group. and believe it or not ive been using google for the past hour to find any help to locate one localy where i live. well for reasons unknown to me i cant find the direct website to the hospital closest to me, so i can see what they have there. when i type...

hi ya'll im elizabeth been here couple years have posted and commented. i love this home for us so thats why im writting this. so heres the short version if i can do it: Aidan had back to back to back sinus infection bout 10 weeks ago they were treated each time but after abx was done he would...

so Aidan started pre-school today. YAH!!!! and believe it or not they dont have anyone certified to give him his enzymes for his snack which is all of 15 minutes long. he only goes 3 days a week from 9-12. i tried everyhting with this director. what if i put just two pills in his pill case and...

Aidan will be starting his first clinical trial for Denefosul in Sept. anyone have any feedback for me ------------------------------ Elizabeth mama to Aidan 4 w/CF

I'll give the short version here cause this has been going on for two months now. Aidan has had a cough that started small just in the morning and the advair seemed to help with that for about two weeks then it took on a life of its own and became a full blown cough during the day and was more...

Aidan's cough has been a mess for going on almost two months. Is there a lot of trial and error with cf? because thats what I feel like happened here. In the weeks leading up to the reults of the culture he got worse and worse. This cough history story is so long I can't even begin to tell it...

I'm curious if any parents give the suppliment turmeric to their toddlers? Aidan will be 4 in 2 weeks, and I saw Wal-Mart has the suppliment at 500mg a capsule. Being as its an herbal supliment I'm not concerned bout the mg. I'm just wondering if other parents give it to their children and do...

My landscaper friend told us today that we have fungus growing in our front yard. im flippin out. is this dangerous for Aidan? And for the past few weeks his fingers have been cracked and peeling in a way i have never seen them do before. first i thought it was from all the salt coming out cause...

ok so its finally going great for aidan as far as the potty training. hes at the point where hes wearing his big boy underwear all day(only at home) and going pee-pee all by himself. the pooping was going good. and he did it a few times by himself without me asking. i was so happy. usually if it...

Hi everyone, i was wondering if any parents wanted to connect with me on facebook. i would love to be able to talk w/ others who are in our cf related world. my son aidan is 3 and even though things are going great now i am always terrified of the other shoe droppin and just scary things...

we went to clinic visit today, and i should start with this is a new hospital we are going to because we moved so this is our second visit. we were being asked the usual questions we go thru at check up and when it came to meds it was stated in his chart that Aidan has asthma. i said no he has...

Aidan had been having the runs for two days now. for the past four days it started with the mushy stuff and i thought it was because he had a runny nose and it was because of the snot he was swallowing. so i called his cf docs and they told me to first ditch his enzymes cause they expire in a...

were having our new home sprayed inside today, cause of the spiders(eeek!) and i am scared cause im not sure if it is ok for Aidan to be inhaling the odor after its done. we wont be in the house when its done and will wait a long while before coming home, but im still scared. the company said it...

There is a possibility that we may be moving to South Carolina. I dont know what part of SC yet. I am searching for anyone who lives there and brings their child to a CF Center. The name of the center or a contact number would be great. Or if anyone has advice on a different center that they...

Ive been reading every post about vests every time i get the chance, and was blown away about how young the children are that are getting the vest. so for months now ive been asking my CF doc and his PT therapist for a vest for Aidan, who just turned TWO in December, and theyve shot me down...

So were into week three of the Tobi and this week we got the added bonus of nose bleeds. now its not gushing or anything but just a little running down his lip. almost like the mist is breaking it up. its really strange to me and i was wondering if anyone has had this happen also. should i be...