Cystic Fibrosis Forum (EXP)

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  1. J

    AARGH Ambry Vs. Quest CF testing

    Doc FINALLY agreeed to the Ambry testing-- I have the box and instructions in my HANDS! BUT AAGRH-- on my way out the door to get the blood drawn on my 5 year old, the doc's office calls and says that Insurance wants me to to go Quest, and IF quest can't do it, Then I can use Ambry. Well, I...
  2. J

    Waiting for Answers-- VERY FRUSTRATED

    Does this sound like CF in a 5 year old boy? 1st 2 years of life, had 24 episodes of croup/asthma 11 hospitalizations of pneumonia. Almost died. Lung collapse. ICU. "uncontrollable" asthma (docs just keep medicating aargh!) Constipation on and off his whole life Low LOW immune system Sinus...
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