Cystic Fibrosis Forum (EXP)

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  1. L

    Sweat test & mutations

    Hi Everyone, I was curious if anyone remembers their sweat numbers and their mutations? My daughter's sweat was 52 & her mutations are I1366T + 5T/TG12. thought it might be interesting to see. Thanks! LMK
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    does everyone culture Staph?

    Hi Everyone, I was wondering, do all CF kids culture Staph? Is Staph only cultured in the CF population, or is it also common umong non-CFer? Thanks for your input! LMK
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    Pancrease sufficient vs. not....?

    Hi Everyone, As my family settles in with the diagnosis of our two kids, ages 11 & 9, I am curious about so many things. Mostly I am wanting to learn more about the course of the disease for poeple who are Pancreatic Sufficient vs. Not. For us, our kids seem to be PS, but their lungs seem...
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    psuedomonas symptoms?

    Hi everybody, I literally rely on this site SO MUCH! I am curious about psuedomonas infection, I haven't cultured PA for the last year,only staph, but know I am getting hit hard and seems like unbearable ear pain. Has anyone ever heard of that? Is there any way to know if this is a...
  5. L

    Vitamin D levels

    Hi everyone, I was curious if anyone has ever had "severly deficient" vit.D levels? If so what was the treatment? supplements or i.v.? Thanks so much for your info! LMK =)
  6. L

    nose bleeds

    Hi everyone, I was just curious, as we are new to this, does anyone else experience frequent nose bleeds with their CF kids? Thanks, LMK
  7. L

    we're new...does this sound right?

    Hi everyone, I have been lurking here since November. My daughter & I have both been diagnosed this month. The information here has been the best! Way better than the 25 Dr. visits or online research! I am so grateful to all of you for sharing your stories. They classify my CF as 'mild' (+...
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