Cystic Fibrosis Forum (EXP)

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  1. F

    Anyone dx d/t a positive newborn screen?

    Our hospital screens for it where most hospitals don't, so those kids wouldn't get tested unless they were symptomatic. My nieces' screen was pos. though to this day she has had no symptoms, and I mean none at all (except right now her growth might be slacking off, but we'll see). Anyway...
  2. F

    So now what?

    My niece was dx after her newborn screen came back with a marker, then she passed her sweat test, then they did the comprehensive panel and they found a 2nd marker....BUT it supposedly is a rare one that they don't have much info on. SO....she has been asymptomatic and was only caught by...
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