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What is haunting me now, 1 month after dx, is how cf will progress for my son. On one hand, he's been healthy enough to not get dx for 11 years. His symptoms have mainly been related to pancreatic insufficiency. So we are dealing with the ill effects of 11 yrs of vitamin deficiencies and...
By October I had had enough of people telling me, ever-so-politely, that I was over-reacting about my son's health. He had been getting sicker over the last year and hadn't gained any weight. His stomach ache's were getting worse and he kept testing positive in throat cultures for Staph A and...
i've gone through tuns of stuff gettin blood drawn so many times i lost track, bunch of xrays,and a bunch of tests but it was the sweat test that dx me. before i found out i had cf my parents thought i had chrones disease,celiac and a couple other things but i'm just glad the docter's finaly...
I'm so glad I found this website. I've been reading a lot of the blogs and have been able to identify with many of them.
My son has gone 11 years undx. It's not that he hasn't been sick. Everytime I brought up a concern to his doctor, it was explained away by things like colic, allergies...
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