Cystic Fibrosis Forum (EXP)

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    Too all cfers! Possible theme song to the cystic fibrosis community!

    Here is a youtube video of the song "Just breathe" by Pearl Jam. This is a graphic video. I dedicate this to the whole cf community! <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=r_2W45Cqh2E ">http://www.youtube.com/watch?v=r_2W45Cqh2E </a> PLEASE WATCH!!!
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    Throwing up with neb. treatments

    I have had to only do neb. treatments in the hospital or at the cf center because each treatment, my body gets so worked up that I throw up and I end up not being able to finish it. I have told my dr.s but they don't have any suggestions. I need to be able to do my pulmazyme, and xopenex, and...
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    7 year old Conner Jones cystic fibrosis/prune belly syndrome!

    7 year old Conner had cystic fibrosis/prune belly syndrome! He lost his battle last night. I pray Blessings on his family and friends. BREATHE EASY CONNER!!! God bless you, you'll always be remembered !!! Fly high and spread your wings and play like the little boy you couldn't be here! Hey...
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    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    I just got out of the hospital a couple weeks ago, and my cf team told me that I have B. Cepacia. They explained that I grow staph bacteria in my lungs because of it. That it is extremely hard to kill with antibiotics. I am supposed to enter into an inhaled antibiotic trial for this bacteria in...
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    I've got bronchitis again for the 4th time this year!!!

    <img src="i/expressions/coughing.gif" border="0">I went to the dr. this last friday..She says that my lungs are closing up and I have bronchitis again for the 4th time this year! I am concerned...The other three times that I have had bronchitis, I ended up with bronchial pneumonia. Now I have it...
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    Cf diet issues

    I am 27 years old. I have cf, peripheral neuropathy, IBS, PTSD, Epsteins Anomaly(triscupid regurgitation). I just got some results to my blood work. I didnt receive any good news. I just found out that I have high cholesterol, elevated blood sugar, HYPOTHYROIDISM, and a mild case of Anemia. I...
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    CF and severe depression...

    I have Severe Anxiety/Depression as well as CF and many other serious health problems. I have neuropathy, IBS, PTSD, Chronic Insomnia, Heart defect (epsteins anomaly), Migraines. (Just to give an idea) Anyway, I have been on so many anti-depressants, but my body doesnt respond to any of them. I...
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    Is there a connection with cfers and insomnia?

    I have chronic isomnia. Most of the time I cant sleep due to serious cf issues. I have recently talked another couple cfers and they feel the sameway that I do. I think that cf affects our sleep cycle majorly. I am writing to see what other cfers think. It might help me discover new ways that cf...
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    I want another baby!

    Im a mother of a beautiful seven year old girl. But I want another baby! But with my cf, I dont know what is safe for me to do about trying to get pregnant! My Bf and I are trying, but I wanna know the best way to take care of myself and my cf, and the safe things to do to help me conceive...
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    CF and Sleep Apnea??

    I am a 27 year old with cf and I was recently hospitalized here in Oregon at the Oregon Health Science University for a cf exasperation. The Cf care team noted that I didnt sleep at all day or night for the whole two weeks I was in there. They are concerned that I might have sleep apnea. But...
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