Cystic Fibrosis Forum (EXP)

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    new swine flu information site

    Here is a good website for info on the swine flu and what to do. It is very new and still under construction but seems to be promising. www.fluhelp.webs.com
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    looking for Aline Elias

    If you are or know how I can get in touch with Aline, please email me or have her email me at akaeg99@gmail.com Thanks a bunch!
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    Left over medical supplies

    I have been working with a mission in Liberia, West Africa for a little over a year now. They have ercenlty built a new facility that houses an infirmary, but they need supplies. I am donating my left-over port flush and home IV supplies. Saline, syringes, needles, gloves, masks, dressing...
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    Left over medical supplies

    I have been working with a mission in Liberia, West Africa for a little over a year now. Recently they built a new facility that houses an infirmary, but they need supplies. They can use almost anything. I'm sending over my left-overs from at-home port flushes and home IVs. Saline syringes...
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    RSV & RSV shot (Synagis) info.

    Bear with me, this is a little long, but it is definitely worth knowing and checking out. The numbers notated (ex. *213*) correspond to footnotes which I will include here so that you can look up any and all of the information quoted. This is the entire section on RSV from...
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    curious

    I don't notice it so much anymore, but I know that my mood change was one of my parents cues when I was a child. It also helped them to assess the severity of whatever was going on.
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    Hey Julie! (wife to Mark 24 w/CF)

    Can you email me privately? <A href="mailto:jaloughlin3@sbcglobal.net">jaloughlin3@sbcglobal.net</A> I have some questions about CF male fertility and treatments. I know you put up some links which I will be checking into also. Thanks.
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    For Parents of Teens with CF

    for parents of teens I have spent hundreds of hours researching and compiling current and accurate research and information on the fertility, pregnancy, childbirth, breastfeeding and health of adults with CF into a website. This is a great resource for parents whose teens are going to be asking...
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    It's finally here!

    The website I've been talking about and have asked several of you about is finally finished! Please come check it out and weigh in with your opinions and suggestions. The focus of the website is current, accurate information based on research regarding the fertility, pregnancy, childbirth...
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    Your Stories Needed - Men & Women with CF

    As you probably know, I am working on a website for adults with CF who are interested in current, accurate information on fertility, pregnancy, childbirth, breastfeeding and parenting. I have my own stories written down, but I would really like to include stories from other adults about their...
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    calling LittleWhippet!

    Hey, I need to get your email so I can try emailing you since you weren't able to email me.  Post it here if you don't mind, or you can IM me.IM: jaloughlin3
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    help me read PFTs please

    What do these differnt things measure? What is more or less important? And what are the litre values ideally supposed to be?FVCFEV1FEF 25-75%FEF 50%FEF 75%PEFI know FVC is forced vital capacity, but what does that mean? I used to think that this was the number people wanted when they ask you...
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    Treatment routine and social life

    Oh no! Not another question about routines! Yes. OK, now that I'm getting the hang of the new routine, what di I do with the social life that just flew out the window? Do you just leave in the middle of a gathering because it's almost time for a tx? If company is at your house, do you just say...
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    Coming Soon

    I am working on building a website with the details of my pregnancy and birth with first (hopefully not last) child, Murren. This site will also have information about fertility, healthy cycles and body awareness. My aim is to provide first-hand knowledge of options for women with CF desiring...
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    Total Lunar Eclipse Tonight!

    There's going to be a total lunar eclipse tonight starting at about 9:30 EST. This won't happen again until March 2007. So, get outside tonight if you can (or tomorrow for those of you in Europe)! The moon should appear red/orange and it's a full moon to boot!
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    Treatment Routine Problems - Finding Time!

    I just wondered if anyone had any good suggestions or could offer their approach to making sure you actually do what needs to be done to stay healthy, i.e. daily treatments.I've just been upped to 3 tx a day from 1 and added TOBI and Pulmozyme. Now I'm supposed to do Albuterol, TOBI, Pulmozyme...
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    CF, Vaccines & Alzheimers?

    I've been reading alot of stuff in various places about the connection between having lots of vaccines in a lifetime and alzheimers. They especially note the people who have gotten flu vaccines (which still contain mercury and are allowed to continue) all their life in addition to the childhood...
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    Boosting Immune Function & General Health

    I've found these awesome supplements that have really helped me decrease my need for antibiotics and hospitalizations. They've also helped my weight to stabilize. The company name is Reliv International and the products are Now, Innergize, and Fibrestore. If anyone is interested in hearing my...
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