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So its been almost 2 weeks since they admitted Austin into the hospital. Poor guy! They have tried to get a pick line in him but have been unsuccessfull. They were trying again this morning hopefully it works. Poor thing has been poked so man time b/c they can't get a pick line and they keep...
I just wanted to let you all know I visited my nephew last night. Its only been a day but he looks and acts much better even with the tubes comong out of him. He had his first dose of enzymes yesterday and did fine. He actually has color and doesn't cry when you put him down unless the nurse is...
I talked with my mom this morning. She said they must of taken 15 viles of blood from him yesterday, for genetic testing (which I don't know how b/c he is so small), they saw about 20 doctors since it is a teaching hospital and was in the ER most of the day waiting for a bed to open up. Finally...
I wanted to thank everyone for all their help and support they gave me on my recent posts. I had my little sister read all the posts last night which helped ease some of her unanswered questions and lift her spirits some. I just learned that they have admitted my nephew to hospital where we were...
So our worst fears were confirmed today. Sweat test performed today is postive for CF. I know although relieved to know whats going on we are still very shocked and upset about it as I am sure all of you were when finding out. They want to see him tommorow to start him on treatment. So know what...
I have a quick question for those with babies/children who have been diagnosed with CF. (For those who don't know my story please read on the family forum "Just my story so far... 2 positive CF tests". Is your child able to go to a regular day care? I was thinking b/c my sister hasn't gone back...
I guess I will start by saying hello to everyone I'm new here. Fairly new to the whole CF idea, actually the idea that my 8 week old nephew has CF.
I guess I will start off with a little background. I am the middle child of 3. All of us girls. My older sister has had 2 children and found out...
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