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Hey all, just need to post since I havent been here for a while. Im still hanging in there and chugging along. Just turned 35 on thursday, still with my 32% lung function and moving every day like theres no tomorrow. Anyway, recently my wife and I have noticed issues that have been around for a...

If you read my last post, my fev1 is down in the mid 20's. Its weird because I still can do everything I did before. I have started doing the treatments I did before, harder. It now seems that CF is taking over my life, and I keep thinking of what I have read about transplants. I was sick in...

Well I went to my CF dr's appt today. I'm feeling pretty good. I was at the gym this am, hit some machines and did 33 mins on the treadmill, at 3.3 mph, had my finger pulse ox with me and I didnt de sat below 92. recovered when I was off the treadmill to 96. So I go to my appt. My fev1 is...

Was in to my Dr's for an appt yesterday. My fev1 is down a little bit, but not anything outrageous. I'm at the same level I was at last year at this time. Anyqay, I did a 6 min walk test, becasue they want to use me in this study. I walk pretty fast, and had the pulse ox on. After about...

Its crazy how I can feel so good one day and so crappy the next. This weather is beating me up, I cant take the humidity. Anyone else having issues on the east coast??? rant over sorry.... Kevin

I have been able to keep my weight up since my g-tube was removed 16 years ago. I am now getting more conscious of what I eat since I have kids and I am trying to teach them to eat healthy. I realized that I eat a bunch of crap lol. I usually eat pizza, sandwiches, milkshakes, and pretty much...

Does anyone know where I can get additional life insurance that wont have a high premium? I have 2 policies now, both which I pay monthly. One is from an old employer that allowed me to keep it if I just paid it which is nice. The other is one that I pay myself monthly. Both are low amounts...

Hey All, I haven't posted for a while here, Ive been doing well though. Today I'm noticing some real tightness in my throat, even to the point that when I swallow it goes down a little difficult. I didnt have this the other day. Yesterday I was really cold, couldnt get my core temp up (it...

Just wanted to throw this out to anyone out there that lives near a WAWA: I hit Wawa about 3-4 times a week (and probably eat about 1000 calories or more everytime I go there <img src="i/expressions/face-icon-small-happy.gif" border="0"> ). I noticed a few months ago that the chocolate milk...

Didn't really try searching but wondering what everyone does for work, or goes to school for? I am an Occupational Therapy assistant and I work at a residential facility for men with mental retardation. I am lucky because they let me work evenings so I only get 65 hrs every 2 weeks and am...

Well in january I was having chills and night sweats. I went in the hosp the first week in feb for pneumonia in my lower r lung mainly. Just this weekend I had a little sweating at night and am having a little chills in the day. I had a sore throat a few weeks ago but that went away. I am...

When I wake up and take that first deep breath in the morning I feel a little soreness. Anyone experience this? I feel it on my left a little but my right lower lobe mostly, where my pneumonia mainly was. I'm clearer than I've ever been though. Maybe its just from it being winter, not sure...

Has anyone ever set up an event to raise money for CF? I am into Jeeps and 4 wheeling. I have an old (1984) Jeep CJ which I brought back from the dead with a new motor and body, and did all the work myself since I bought it for $300 in 2002 (more work to come this year, different motor!). I...

I've been on IV antibiotics for almost 3 weeks now. I feel 100% better. I had pneumonia. On my Right lower lobe the xray showed white, it has mucous down there. I can't seem to get it up. I have a hard time bringing mucous up as my body's not really producing any due to the antibiotics. My...

Well I had a chest x-ray on 1/30, went to the dr's on 1/31, and he said I had pneumonia. Its only the second time I had it, last time I was 12 or 14 maybe, so I didn't remember what it felt like. Anyway I went in the hosp on 2/1 and came out on 2/6. I am doing iv antibiotics at home and have...

Well I am still getting my fevers chills and sweats. I went to my family Dr. They did bloodwork. White cell count is normal, hemaglobin is a little low, everything else is ok. They did some more bloodwork last night and 2 cultures. I called my CF DR this week, and they didn't call back, so...

I searched and read a lot of posts on this but I have been having them for about 2 weeks now. Going through 2 sets of clothes a night. My wife and kids had a stomach flu last week then I got it. I don't have any symptoms anymore (vomiting etc). Just these night sweats. I don't feel sick, as...

Hi everyone I'm new here. I am a 29yo mail with CF. I'm fairly healthy but something weird came up this weekend. I was coughing a lot on Sat night in my sleep. I have a pain in my ribs on my right side, seems like a bruised rib, which I've done before, no biggie. If I breath in and out it...