This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
My son is 3 years old, weighs 13 kilos and is 94 cm (about 14BMI). Since his infancy we were frustrated with his lack of appetite and knew he was not getting enough calories (about 900 calories per day). We agreed to the G-tube and he had the surgery on October 5 2009. A few days before the...
Hello,
My 2.5 year old son has been using the Hillrom brand Vest since September '08 at a Frequency of 12 and a Pressure of 3. His weight is 12.3 kilos (about 27.5 lbs) and height is 90 centimeters (about 3 feet).
How and when did your or your child's vest frequency & pressure increase?
I...
Hello everyone! My son is 4-months old with the following mutations of CF: 1525-1G>A and W496X. I understand that this does not necessarily help with the prognosis so I have no questions to that end but would like to know the experinces of other babies with CF.
He takes enzymes (Creon 5 max 10...
Hello everyone! I thought this forum to be appropriate to ask about air travel because individuals who love to ski, surf, and more probably have to travel by air at one point or another to get to the best spots!
My son is 4-months old with the following mutations of CF: 1525-1G>A and W496X. I...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.