Cystic Fibrosis Forum (EXP)

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  1. W

    Atelectasis- 1yr old with partial lung collapse

    Hello- My youngest child 1.2 years old has cf and was seen at the hospital this past Friday because of severe coughing fits. XRAY revealed an Atelectasis on his upper left lobe. The clinic gave us pulmozyne and told us to up his chest pt and sent us on our way. We will check in with them...
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    Fish oit supplement-dha

    Hello. What information does any one have to contribute to the use of fish oil as a supplement for cf and inflammation. There are many interesting articles out their for the use of DHA and it's ability to combat inflammation. Also another food idea-what has anyone heard about fageh (sp?)...
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    Odd bowel movements in 6 mos old w cf

    Hello. My 6 mos old with cf has had odd poop since birth. Once on enzymes-he was dx at 7days with newborn screening-the fattiness went away but odd sinewy, mucus stuff remains in his movements. His weight gain and growth are off the charts and he has no other symptoms. I have three older...
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    How much public activity do you limit with your newborn with CF

    Hello. I am a mom of four. Our three oldest children are all with out cf, our fourth child, was born 02/03/07. We found out a week later through newborn screening he has CF. The other children were tested and two were questionable after sweat testing however genetic testing reported that...
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