Cystic Fibrosis Forum (EXP)

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    Please talk to me about Gtubes

    I have lots of questions, so I really appreciate anyone who reads this and answers for me! I am a little overwhelmed when reading about Gtubes because it seems like there are several ways to place the tube (some involving an incision, others endoscopicly, etc) and several types of tubes/buttons...
  2. G

    Please talk to me about Gtubes

    I have lots of questions, so I really appreciate anyone who reads this and answers for me! I am a little overwhelmed when reading about Gtubes because it seems like there are several ways to place the tube (some involving an incision, others endoscopicly, etc) and several types of tubes/buttons...
  3. G

    Hypertonic Saline tolerance test?

    I brought up HTS at my daughter's most recent clinic appointment and her pulm said she would need to do a pft test to make sure she can tolerate it. I have never heard anything about this before so I am curious if others have done this too?
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    Kings Island in OH?

    We are going to be at Kings Island Theme Park for 2 days and I am trying to plan ahead for my daughter who is 6 wcf. I called the park but the lady I spoke with wouldn't give me any information on accomodations, she just said that I would have to go to guest services when we get there to find...
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    Doing Vest & Nebs in Car

    I posted this in adults and thought I would here too! We like to have our daughter do her vest & nebs in the car while we are traveling but need to get a new inverter bc the one we currently has will only work with her vest on her lower settings and it won't work with the nebulizer. I have...
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    Doing Vest & Nebs in Car

    We like to have our daughter do her vest & nebs in the car while we are traveling but need to get a new inverter bc the one we currently has will only work with her vest on her lower settings and it won't work with the nebulizer. I have been reading about watts, and all that stuff but I am not...
  7. G

    ? about Neil Med SInus Rinse

    I am hoping to save a minute or two of daily prep time here so I am wondering if it is okay to mix the solution in the bottle then use 1/2 of the solution in the morning then use the other 1/2 in the evening without cleaning the bottle? My daughter only uses 1/2 the amount (4 oz) and we have...
  8. G

    Respiritech Vest

    Hi, does anyone have the info on why the Respiritech Vest works better than the others? I know it has to do with the waveforms but I need something that explains it better than I do! Thanks!
  9. G

    Gastric Emptying Study

    Hi, my cfer is 4 and hasn't gained much weight over the past year. She doesn't have much of an appetite and often complains of fullness after eating a few bites of food. She is now taking Prevacid which definately has increased her appetite and she doesn't complain of fullness with it (any...
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    Would like to get the Respirtech Vest

    I guess I feel sort of guilty about this...my daughter (4)already has a Hill Rom Vest. We like it fine, although it annoys us that the tubes fall off all the time and she can't plug them back in herself and also it kinda stinks that it can't be programmed BUT the real reason why we would like a...
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    Sorry double post!

    deleto!
  12. G

    Self Employed and Insurance?

    Hi, my husband is hoping to become self employed this year. I am a SAHM so our insurance is through his current employer. He has been exploring insurance possibilities but it looks like our daughter would either be denied or the cost would be VERY high. So far, I believe Anthem is the only...
  13. G

    Self Employed and Insurance?

    Hi, my husband is hoping to become self employed this year. I am a SAHM so our insurance is through his current employer. He has been exploring insurance possibilities but it looks like our daughter would either be denied or the cost would be VERY high. So far, I believe Anthem is the only...
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